NeuroEndocrine Cancer Australia has established patient support groups across Australia, as well as two active Facebook Private Discussion Groups and linkages to Cancer Connect program which is one to one peer support.
Being diagnosed with Neuroendocrine or sometimes called NETs or Carcinoid cancer, can be even more confusing and daunting due to the lack of information and resources readily available.
Support groups can be a wonderful way of getting local knowledge about the doctors and system more generally, as well as being a fantastic way to connect with others who have travelled a similar path.
Find a Support Group
Click on the relevant state to locate your closest support group.
Facebook Support Groups
We also have two Private Groups on Facebook, which is another way of connecting with others affected by NETs.
These are private groups, meaning Facebook friends can’t see who is in the group, or anything you post in the group space.
Our main Private Discussion Group can be found here, and our Private NET Carers group here (once you click on “Join Group”, you will be guided to answer three questions, so your membership can be approved).
Peer Support via Phone
We can also link those recently diagnosed with NETs with trained Peer Support Volunteers, via phone, through the Cancer Council’s Cancer Connect Program. These volunteers are people who have had NETs (many of them for several years), who have undergone careful selection and training via the Cancer Council. This is a free, confidential service.
To link up with a volunteer, please contact our NET Nurse.
Click here to find out more about Telephone Support Groups for those with Advanced Cancer and for Carers.
Join Us Live!
Let’s Talk About NETs is an ongoing educational series of conversations with experts covering a vast array of topics of interest to neuroendocrine cancer patients, carers and healthcare professionals.
Keep an eye on our social media for the next scheduled session.
If you would have any questions asked ahead of this session please email: info@neuroendocrine.org.au and we will endeavour to answer as many questions as possible.
Next session is in production, come back soon.
Zoom - National Online Support Group
Online support groups are held monthly to ensure we reach everyone right across Australia. All patients and carers are welcome. If you would like to receive a link to join please email our NET Nurse
National Zoom Meetings – 2026
Thursday 26th February 11:00am – 12:30pm AEDT
Friday 27th March 2:30pm–4:00pm AEDT
Wednesday 29th April 11:00am – 12:30pm AEST
Thursday 28th May, 2:30pm – 4:00pm AEST
Monday 29th June 6:30pm – 8:00pm AEST
Wednesday 29th July, 11:00am – 12:30pm AEST
Thursday 27th August, 2:30pm – 4:00pm AEST
New South Wales and ACT
Central Coast
Dates/Times – 2026
Support groups run from 1:00pm – 3:00pm
Thursday 5 February
Thursday 16 April
Thursday 25 June
Thursday 20 August
Thursday 15 October
December Christmas Party- TBA
Location
East Gosford Regional Gallery, Webb Street, East Gosford
St George
Dates/Times – 2026
Support groups run from 12:00pm – 1:30pm.
Tuesday 24 February
Tuesday 28 April
Tuesday 23 June
Tuesday 25 August
Tuesday 13 October
Tuesday 1 December
Location
St George Leagues Club 124 Princes Hwy, Kogarah NSW 2217
Coffs Harbour Health Campus
Dates/Times – 2026
1.30pm-3.30pmWednesdays
18th February
15th April
17th June
19th August
21st October
Location
Shear Water Lodge – 345A Pacific Hwy, Coffs Harbour NSW 2450
Canberra
Dates/Times 2026
All sessions: 10:30am – 12:30pm
Friday 13th February
Friday 10th April
Friday 12th June
Friday 14th August
Friday 9th October
Friday 11th December
Location
The Raiders Club,
1 Liardet Street,
Weston, ACT
Queensland
Fortitude Valley (Brisbane)
Dates/Times – 2022
Wednesday 2nd Feb, Cancelled
Wednesday 4th May, 11am – 1pm
Wednesday 8th June, 11am – 1pm
Wednesday 17th August, 11am – 1pm
Wednesday 5th October, 11am – 1pm
Wednesday 7th December, 11am – 1pm
Location
Cancer Council QLD
Auditorium
553 Gregory Terrace
Fortitude Valley
South Australia
Eastwood (Adelaide)
Dates/Times – 2026
All sessions 3:00pm – 5:00pm
Tuesday 10th February
Tuesday 14th April
Tuesday 9th June
Tuesday 11th August
Tuesday 13th October.
Late November/December Christmas Catch up (location and time TBA)
Notification and reminders of upcoming meetings will be emailed out in 1-2 weeks before the meeting.
Family members and support people are always welcome to attend. They often find the discussions helpful and gain valuable insight and support from the group as well.
Location
Cancer Council
202 Greenhill Road Eastwood, SA 5063
Tasmania
Launceston, dates/times 2026
Tuesday 27th January, 1.30pm-3.30pm
Tuesday 24th March, 1.30pm-3.30pm
Hobart, dates/times 2026
Monday 23rd February, 2.30pm- 4pm
Monday 27th April, T.B.C.
Launceston
Cancer Council, 69 Howick Street, Launceston
Hobart
Cancer Council, 15 Princes Street, Hobart
Western Australia
Murdoch (WA)
Dates/Times – 2026 – All sessions 6:30 pm – 8:30pm
Wednesday 4th February
Wednesday 1st April
Wednesday 5th August
Wednesday 7th October
Wednesday 2nd December
Location
Meeting Room G7
Education Building
Fiona Stanley Hospital
Bunbury (WA)
Dates/Times – 2025
All sessions take place from 11:30am – 1.30pm
Tuesday 13th January
Tuesday 3rd March – March4NETs event
Tuesday 5th May
Tuesday 7th July
Tuesday 1st September
Tuesday 10th November (Neuroendocrine Cancer Day)
December Luncheon TBC
Location
Dot’s Place, South West Support Centre
Cancer Council Western Australia
62 Forrest Avenue
Bunbury WA 6230
Cancer Council Telephone Support Groups
Cancer Council Telephone Support Groups are held twice a month (details below). Referrals or direct enquiries can be made by calling 1300 755 632 or by emailing: tsg@nswcc.org.au
Name and phone number are required to access this service.
Advanced Cancer TSG
This group is suitable for people with any cancer type that has moved into other organs or areas of the body and is diagnosed as ‘Advanced’, ‘Terminal’ or ‘Metastasised’. For people with NETs, this group may be helpful when their tumours are no longer responding to treatment (as people with ‘Advanced’ NETs can be stable for many years)
Carers TSG
This group is suitable for the primary carer of someone with cancer. The diagnosis can be of any cancer type and the relationship of the carer to the patient could be partner, spouse, parent or (adult) child.