NeuroEndocrine Cancer Australia has established patient support groups across Australia, as well as two active Facebook Private Discussion Groups and linkages to Cancer Connect program which is one to one peer support.
Being diagnosed with Neuroendocrine or sometimes called NETs or Carcinoid cancer, can be even more confusing and daunting due to the lack of information and resources readily available.
Support groups can be a wonderful way of getting local knowledge about the doctors and system more generally, as well as being a fantastic way to connect with others who have travelled a similar path.
Find a Support Group
Click on the relevant state to locate your closest support group.
Facebook Support Groups
We also have two Private Groups on Facebook, which is another way of connecting with others affected by NETs.
These are private groups, meaning Facebook friends can’t see who is in the group, or anything you post in the group space.
Our main Private Discussion Group can be found here, and our Private NET Carers group here (once you click on “Join Group”, you will be guided to answer three questions, so your membership can be approved).
Peer Support via Phone
We can also link those recently diagnosed with NETs with trained Peer Support Volunteers, via phone, through the Cancer Council’s Cancer Connect Program. These volunteers are people who have had NETs (many of them for several years), who have undergone careful selection and training via the Cancer Council. This is a free, confidential service.
To link up with a volunteer, please contact our NET Nurse.
Click here to find out more about Telephone Support Groups for those with Advanced Cancer and for Carers.
Join Us Live!
Let’s Talk About NETs is an ongoing educational series of conversations with experts covering a vast array of topics of interest to neuroendocrine cancer patients, carers and healthcare professionals.
Keep an eye on our social media for the next scheduled session.
If you would have any questions asked ahead of this session please email: info@neuroendocrine.org.au and we will endeavour to answer as many questions as possible.
Next session is in production, come back soon.
Zoom - National Online Support Group
Online support groups are held monthly to ensure we reach everyone right across Australia. All patients and carers are welcome. If you would like to receive a link to join please email our NET Nurse
National Zoom Meetings – 2025
Tuesday 28th January, 6:30pm – 8:00pm AEDT
Monday 24th February, 2:30pm – 4:00pm AEDT
Thursday 27th March, 11:00am – 12:30pm AEDT
Tuesday 29th April, 6:30pm – 8:00pm AEST
Friday 30th May, 2:30pm – 4:00pm AEST
Thursday 26th June, 11:00am – 12:30pm AEST
Monday 21st July, 2:30pm – 4:00pm AEST
Friday 29th August, 2:30pm – 4:00pm AEST
Thursday 25th September, 11:00am – 12:30pm AEST
Tuesday 28th October, 6:30pm – 8:00pm AEST
Friday 21st November – 2:30pm – 4:00pm (AEDT)
Thursday 18th December, 11:00am – 12:30pm AEDT
New South Wales and ACT
Central Coast
Dates/Times – 2025
Thursday 6th February, 12:00pm – 2:00pm
Thursday 3rd April, 12:00pm – 2:00pm
Friday 2 May 11:00am – 1:00pm (Dr Matt Wong Medical Oncologist will be speaking to the group)
Thursday 29 May, 12:00pm – 2:00pm
Thursday 7 August, 12:00pm – 2:00pm
Thursday 2 October, 12:00pm – 2:00pm
Friday 6th December (Christmas Party)
Location
East Gosford Regional Gallery, Webb Street, East Gosford
St George Hospital
Dates/Times – 2025
Informal get together at St George Leagues 18 February at 12pm
All support groups run from 2:00pm – 3:30pm
Tuesday 8th April
Tuesday 3rd June
Tuesday 19th August
Tuesday 7th October
Tuesday 9th December
Location
St George Hospital
Ground Floor
Research and Education Centre
South Street
Kogarah (just beside the car park)
Coffs Harbour Health Campus
Dates/Times – 2025
Friday 21st February, 1:00pm – 3:00pm
Wednesday 16th April, 1:00pm – 3:00pm
Friday 20th June, 1:00pm – 3:00pm
Wednesday 13th August, 1:00pm – 3:00pm
Friday 17th October, 1:00pm – 3:00pm
Location
Shear Water Lodge – 345A Pacific Hwy, Coffs Harbour NSW 2450
Canberra
Dates/Times 2025
All sessions: 10:30am – 12:30pm
Friday 14th February
Friday 11th April
Friday 13th June
Friday 8th August – to be confirmed
Friday 10th October – to be confirmed
Friday 12th December – to be confirmed
Location
The Raiders Club,
1 Liardet Street,
Weston, ACT
Queensland
Fortitude Valley (Brisbane)
Dates/Times – 2022
Wednesday 2nd Feb, Cancelled
Wednesday 4th May, 11am – 1pm
Wednesday 8th June, 11am – 1pm
Wednesday 17th August, 11am – 1pm
Wednesday 5th October, 11am – 1pm
Wednesday 7th December, 11am – 1pm
Location
Cancer Council QLD
Auditorium
553 Gregory Terrace
Fortitude Valley
South Australia
Eastwood (Adelaide)
Dates/Times – 2025
Tuesday 25th February, 3pm-5pm
Tuesday 8th April, 3pm-5pm
Tuesday 10th June, 3pm-5pm
Tuesday 12th August, 3pm-5pm
Tuesday 14th October, 3-5pm
December Christmas catch up. Date TBD
Location
Cancer Council
202 Greenhill Road Eastwood, SA 5063
Tasmania
Southern Tasmanian Support Group
For up to date details on all Cancer Council Tasmania support groups and programs, or to register or find out more please go to the Cancer Council Tasmania supportive care webpage Tasmania cancer support and information centres |or contact them on 1300 65 65 85.
North (Launceston Support Centre)
Men’s All Cancer Second Thursday of the month 10am – 12noon.
Women’s All Cancer First Tuesday of the month 1.30 pm – 3pm .
South (Hobart Support Centre)
Metastatic Breast Cancer Second Wednesday of the month 2pm – 4pm.
Bowel Cancer Second Thursday of the month 2pm – 4pm
Prostate Cancer Third Tuesday of the month 2pm – 4pm.
All Cancers Fourth Tuesday of the month 2pm – 4pm
Swansea Fourth Monday of the month 10.30 a.m.
Triabunna 3rd Wednesday of the month 5 pm
North West (Devonport Support Centre)
Men’s Support Group Last Thursday of the month from 2pm
Location
Cancer Council
15 Princes St
Sandy Bay
NOTE: Register to attend these meetings by calling 13 11 20
Western Australia
Murdoch (WA)
Dates/Times – 2025
Wednesday 5th February, 6:30pm – 8:30pm
Wednesday 2nd April, 6:30pm – 8:30pm
Wednesday 4th June, 6:30pm – 8:30pm
Wednesday 6th August, 6:30pm – 8:30pm
Wednesday 1st Oct, 6:30pm – 8:30pm
Wednesday 3rd Dec, 6:30pm – 8:30pm
Location
Meeting Room G7
Education Building
Fiona Stanley Hospital
Bunbury (WA)
Dates/Times – 2025
All sessions take place from 11:30am – 1.30pm
Tuesday 14th January
Tuesday 4th March
Tuesday 6th May
Tuesday 1st July
Tuesday 2nd September
Tuesday 4th November
December TBC
Location
Dot’s Place, South West Support Centre
Cancer Council Western Australia
62 Forrest Avenue
Bunbury WA 6230
Cancer Council Telephone Support Groups
Cancer Council Telephone Support Groups are held twice a month (details below). Referrals or direct enquiries can be made by calling 1300 755 632 or by emailing: tsg@nswcc.org.au
Name and phone number are required to access this service.
Advanced Cancer TSG
This group is suitable for people with any cancer type that has moved into other organs or areas of the body and is diagnosed as ‘Advanced’, ‘Terminal’ or ‘Metastasised’. For people with NETs, this group may be helpful when their tumours are no longer responding to treatment (as people with ‘Advanced’ NETs can be stable for many years)
Carers TSG
This group is suitable for the primary carer of someone with cancer. The diagnosis can be of any cancer type and the relationship of the carer to the patient could be partner, spouse, parent or (adult) child.
