Resources

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Support Groups

NSW & ACT Support Groups

Educational Videos

Nutrition and NETs Webinar – the latest research

Booklets & Guides

Nutrition and Neuroendocrine Tumours

Clinical Trials

ONJCRI Immunotherapy Trial: Nivolumab & Ipilimumab for Rare and Advanced Cancers

This protocol provides an important opportunity to establish whether the combination of nivolumab & ipilimumab has efficacy in these cancers.
Support Groups

Online Support Groups

Educational Videos

Optimal Care Pathway for Neuroendocrine Tumours (NETs)

Fact Sheets

Palliative Care & End of Life Care Resource List

Fact Sheets

Para & Phaeo Factsheet

Wellness

Parenting through Cancer

Clinical Trials

PARP Inhibitor With 177Lu-DOTA-Octreotate PRRT in Patients With Neuroendocrine Tumours (PARLuNET)

PARLuNET is a phase 1 dose-escalation study designed to evaluate the safety and tolerability of talazoparib (PARP Inhibitor) in...
Other Resources

Patient Card – Bathroom

Other Resources

Patient Card – Medical Alert

Educational Videos, Explainer Videos

Peptide receptor radionuclide therapy (PRRT)

Clinical Trials

Phase 3 Trial of CAM2029 vs Standard Treatments in GEP-NET Patients

The purpose of this study is to compare the effectiveness and safety of CAM2029 to octreotide LAR or lanreotide ATG in patients with advanced, well-differentiated GEP-NET.
Causes & Risk Factors

Potential Carcinogens and Neuroendocrine Tumour Risk

Wellness

Preparing for the holiday season

Walk, run, or ride this March4NETs!

For its third year, March4NETs will run throughout March 2026.

Get involved and support the 31,000 Australians living with neuroendocrine cancer.