Getting Diagnosed
Patient Resources
Our patient resources are designed to help you understand, manage, and live well with neuroendocrine cancer.
Here you’ll find practical tools and information to guide you through every stage of your journey, from diagnosis and treatment to living with neuroendocrine cancer day to day.
These resources are created and reviewed by experts to ensure they’re accurate, reliable, and easy to understand.
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If you are unsure of any information, please contact our NET Nurses on 1300 287 363 or speak with your healthcare professional.
Should you require fact sheets in another language please click through below to the International Neuroendocrine Cancer Alliance (INCA) website fact sheet area for Arabic, Chinese (Mandarin), English, French, German, Hindi, Italian, Japanese, Russian and Spanish versions.
Causes & Risk Factors
Neuroendocrine Tumours and Blood Sugar Levels
Treatment Options
Neuroendocrine Tumours and Bone Health
Symptoms
Neuroendocrine Tumours and Cardiac Symptoms
Symptoms
Neuroendocrine Tumours and Neurological Symptoms
Symptoms
Neuroendocrine Tumours and Respiratory Symptoms
Booklets & Guides
Neuroendocrine tumours: A guide for healthcare professionals
Booklets & Guides
Neuroendocrine tumours: A guide for patients and carers
Treatment Options
New Medicare item for PRRT (Lu-DOTA) added from 1 November 2025
Support Groups
NSW & ACT Support Groups
Educational Videos
Nutrition and NETs Webinar – the latest research
Booklets & Guides
Nutrition and Neuroendocrine Tumours
Clinical Trials
ONJCRI Immunotherapy Trial: Nivolumab & Ipilimumab for Rare and Advanced Cancers
This protocol provides an important opportunity to establish whether the combination of nivolumab & ipilimumab has efficacy in these cancers.
Support Groups
Online Support Groups
Educational Videos
Optimal Care Pathway for Neuroendocrine Tumours (NETs)
Fact Sheets
