Patient Resources

Our patient resources are designed to help you understand, manage, and live well with neuroendocrine cancer.

Here you’ll find practical tools and information to guide you through every stage of your journey, from diagnosis and treatment to living with neuroendocrine cancer day to day.

These resources are created and reviewed by experts to ensure they’re accurate, reliable, and easy to understand.

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If you are unsure of any information, please contact our NET Nurses on 1300 287 363 or speak with your healthcare professional.

Should you require fact sheets in another language please click through below to the International Neuroendocrine Cancer Alliance (INCA) website fact sheet area for Arabic, Chinese (Mandarin), English, French, German, Hindi, Italian, Japanese, Russian and Spanish versions.

Causes & Risk Factors

Neuroendocrine Tumours and Blood Sugar Levels

Treatment Options

Neuroendocrine Tumours and Bone Health

Symptoms

Neuroendocrine Tumours and Cardiac Symptoms

Symptoms

Neuroendocrine Tumours and Neurological Symptoms

Symptoms

Neuroendocrine Tumours and Respiratory Symptoms

Booklets & Guides

Neuroendocrine tumours: A guide for healthcare professionals

Booklets & Guides

Neuroendocrine tumours: A guide for patients and carers

Treatment Options

New Medicare item for PRRT (Lu-DOTA) added from 1 November 2025

Educational Videos, Forum Videos

New Treatments including Cabozantinib presented by Dr Chris Lomma

NET Patient Forum Perth 2026 - New Treatments including Cabozantinib presented by Dr Chris Lomma
Support Groups

NSW & ACT Support Groups

Educational Videos

Nutrition and NETs Webinar – the latest research

Booklets & Guides

Nutrition and Neuroendocrine Tumours

Clinical Trials

ONJCRI Immunotherapy Trial: Nivolumab & Ipilimumab for Rare and Advanced Cancers

This protocol provides an important opportunity to establish whether the combination of nivolumab & ipilimumab has efficacy in these cancers.
Support Groups

Online Support Groups

Educational Videos

Optimal Care Pathway for Neuroendocrine Tumours (NETs)

Fact Sheets

Palliative Care & End of Life Care Resource List

Tax Appeal

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Help 31,000+ neuroendocrine cancer patients get the specialised care they deserve.

Every dollar raised is fully tax deductible and helps fund much needed advocacy efforts and patient support.