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For MPs
Be a voice for change in neuroendocrine cancer care and awareness.
Neuroendocrine cancer is the seventh most common cancer in Australia. More than 31,000 Australians are living with neuroendocrine cancer’s today and one Australian is diagnosed every 90 minutes. Many still face delayed diagnosis, limited specialist access, and gaps in coordinated care.
For MPs
As leaders in government and policy, MPs play a critical role in improving outcomes for people living with neuroendocrine cancer. NECA is here to support you with reliable information, expert advice, and real stories from your community.
Why Neuroendocrine Cancer Needs Attention
- Neuroendocrine cancer’s are one of the fastest rising cancers worldwide.
- Australians often experience misdiagnosis delays of five to seven years.
- Access to specialist NET clinicians, nurses, and services varies greatly across the country and can be limited.
- Patients face inequitable access to diagnostics, treatments, and clinical trials.
Supporting improved diagnosis and treatment for neuroendocrine cancer’s strengthens cancer care across the health system.
How We Can Work Together
1
Support National Policy Change
Current NECA policy priorities include:
- Funding for specialist NET nurses in each state
- Improving access to early diagnosis through imaging and biomarker pathways
- Fair and transparent access to medicines through HTA reform
- Implementing the Government response to the Senate Inquiry
- Supporting improved access to clinical trials across Australia through stronger national trial networks, clearer referral pathways, and reduced geographic barriers
We can brief your office at any time.
2
Hear From Your Constituents
Many Australians in your electorate are affected by neuroendocrine cancer.
NECA can:
- Provide local patient stories
- Connect your office with advocates
- Share local statistics
3
Meet With Our Team
MPs and advisors play a vital role in improving outcomes for people living with neuroendocrine cancer. Meeting with NECA’s team helps ensure you have the latest information on patient needs, service gaps, and national priorities.
We can:
- Provide tailored briefings on the issues affecting your electorate
- Discuss emerging priorities and unmet needs in neuroendocrine cancer care
- Share insights from clinicians, researchers, and advocates
These conversations help guide meaningful action in Parliament and across the health system.
4
Attend Our Parliamentary Events
NECA hosts briefings, panel discussions and awareness events at Parliament House from time to time. These sessions bring together clinicians, patient advocates, policy leaders, and industry experts to highlight the needs of people living with neuroendocrine cancer.
We welcome your involvement in these important conversations that help shape cancer care in Australia.
5
Access MP Resources
NECA can provide:
- Electorate-specific briefing packs
- Fact sheets on neuroendocrine cancer
- Policy summaries and submissions
- Media resources for awareness days
Helpful Resources
Fact Sheets
5HIAA
Causes & Risk Factors
Abdominal Pain in NETs
Booklets & Guides
About NETs
Booklets & Guides
Acronyms & Terminology for Neuroendocrine Cancer Patients
Causes & Risk Factors
Age and Gender as Risk Factors for NETs
Treatment Options
Anatomic Distribution of Neuroendocrine Tumours
Booklets & Guides
Associated Conditions
Clinical Trials
AUS-NET – Neuroendocrine Tumours
To improve patient quality of life and develop a cost-effective system that can be implemented across other rare cancers in the future.
Other Resources
