Fact Sheets
Tuberous Sclerosis
Overview
Tuberous Sclerosis (TS) is an inherited condition characterised by benign growths in the skin, brain, kidneys, lungs and heart, which can affect how these organs function.
People with TS may be at risk of developing insulinomas – a Neuroendocrine tumour of the pancreas.
Helpful Resources
Causes & Risk Factors
Abdominal Pain in NETs
Booklets & Guides
About NETs
Booklets & Guides
Acronyms & Terminology for Neuroendocrine Cancer Patients
Causes & Risk Factors
Age and Gender as Risk Factors for NETs
Booklets & Guides
Associated Conditions
Clinical Trials
AUS-NET – Neuroendocrine Tumours
To improve patient quality of life and develop a cost-effective system that can be implemented across other rare cancers in the future.
Other Resources
Australian Patient Travel Subsidy Scheme
Booklets & Guides
Basic Testing sheet for GastroEnteroPancreatic (GEP) Neuroendocrine Tumors (NETs)
Getting Diagnosed
