Our Purpose
To raise awareness and understanding of neuroendocrine cancer (NETs), both within the medical profession and the wider Australian public, and provide support to our NET community.
Our Mission
To assist and support patients and carers; lobby for new, appropriate treatments and investigations; raise awareness and knowledge of neuroendocrine cancers within the medical community and general public and encourage and support neuroendocrine cancer Research.
Our Vision
Our vision continues to be the
champions of earlier diagnosis
and a cure for neuroendocrine
cancer.
Our Values
Nurture
Cultivate growth and compassion through patient care and support.
Empower
Ignite confidence to create positive change.
Care
Demonstrate genuine concern and empathy for the well-being of others.
Accountable
Take responsibility for our actions with integrity and transparency.
Strategic Priorities
These priorities will set the goals we are aiming to achieve in the next 3 years (2024 – 2026).
2024 Goals
2025 Goals
2026 Goals
Support
Increase NET patient support
2024 Goals
- Secure ongoing funding for 3 NET Nurses
- Undertake patient resource audit and develop resources to meet unmet needs
- Continue to allocate nurses and health professionals providing telehealth and referral pathways in each state
- Expand services to include dietitian and counsellor
2025 Goals
- Secure additional funding to provide ongoing regional &
rural access to services and
support - Obtain additional nurses
providing telehealth and
referral pathways as per ACNNP – Specialist Support Services
2026 Goals
- Continue to monitor effects of services and introduce additional services to meet our patients needs
- Continue to increase staff within the allocated budget (Specialist Support Services Grant)
- Lobby for ongoing funding past 2027 for Specialist Support Services
Education
Increase education
2024 Goals
- Secure grant funding from federal government (CPSG) for education
- Secure grant funding from federal government (CPSG) for education
- Implement HCP education—in services/modules
- Expand distribution of OCP
amongst HCPs - Implement Symptom
Awareness Campaign
2025 Goals
- Develop medical & nursing
materials and curriculums - Expand presence at relevant
medical, industry and
consumer conferences as
invited speakers - Develop PRRT education module for HCPs
- Develop Dietitian Education
Modules for implementation
nationally and internationally
2026 Goals
- Develop and expand educational resources for multidisciplinary HCPs
- Garner support for inclusion of educational materials in
relevant medical/nurse
curriculums - Maintain currency of resources – review regularly and develop additional educational resources
Awareness
Increase awareness and visibility
2024 Goals
- Increase awareness amongst HCP and general public through F2F meetings, social media
- Develop and host a dedicated
annual NET event - Promote availability of OCP to wider health & industry
Networks - Continue PR contract to keep momentum
2025 Goals
- Undertake ongoing awareness campaign
- Host dedicated annual event – nationally and then state events in collaboration
- Increased media exposure by expanding journalist outreach
- Development of media kit for MPs & third parties
2026 Goals
- Increased attendance over previous year s dedicated annual NETs event
- Expand use of media kit for third parties to use
- Enhance media engagement by 15% increase on previous
year’s media presence
Research
Foster advancements and innovation
2024 Goals
- Revitalise Neuroendocrine Cancer Registry—PLANET Registry operational in Centres of
Excellence - Recruitment to AUSNET study—nurse led shared care model
- NECA is acknowledged as
partner of choice for inclusion
in international trials and
projects—key stakeholders—
ENETs, CommNETs
2025 Goals
- Secure funding for Genetic/ Genomic Study and commencement of research
- Increased data entry to PLANET Registry
- Monitor government funding for NET Research and clinical trials
- Explore partners in non-government research
2026 Goals
- Sustainability of PLANET
- Enhance consumer education in research to increase participation in research, study and trial development
- Lobby government for equitable funding including NHMRC & MRFF
Advocacy
Equity of access to treatments (PBS)
Equity of access to diagnostic investigations (MBS)
2024 Goals
- MSAC submissions
- Advocate for government to action Senate Inquiry recommendations
- Lobby MPs
- Develop advocacy materials for third parties to implement their own representation to
governments - Continued implementation of the National Action Plan
- Ambassador inclusion
2025 Goals
- Clinical Trial funding (dedicated stream for Rare & Less Common Cancers)
- Continued implementation of
the National Action Plan
2026 Goals
- Continued implementation of the National Action Plan
- Recognition—secure ongoing funding from Government by lobbying for support services and resources
- Garner third party support to lobby on NECAs behalf for significant allocation of funding of NETs through major MRFF grant or Federal Budget item
Financial Sustainability
Increase funding
2024 Goals
- Maintain and enhance 2024/ 2025 funding from existing sources
- Achieved Federal Government funding for specialist support services program
- Ongoing Federal Government—grant applications
- Non-government Grant
applications - Clinical Trial partnerships
- Corporate Partners
- Prebudget Submission
- Organisation Events for fundraising state and national
2025 Goals
- Government funding—State & Federal for awareness & nursing program
- Clinical Trials – partnerships & applications for grants NHMRS / MRFF
- Corporate Partners
- Prebudget Submission
- Organisation Events for fundraising state and national
2026 Goals
- Philanthropic promotion
- Bequests – Gift in wills
- Organisation Events for fundraising state and national
- Corporate Partners
- Prebudget Submission
