Patient Resources

Our patient resources are designed to help you understand, manage, and live well with neuroendocrine cancer.

Here you’ll find practical tools and information to guide you through every stage of your journey, from diagnosis and treatment to living with neuroendocrine cancer day to day.

These resources are created and reviewed by experts to ensure they’re accurate, reliable, and easy to understand.

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If you are unsure of any information, please contact our NET Nurses on 1300 287 363 or speak with your healthcare professional.

Should you require fact sheets in another language please click through below to the International Neuroendocrine Cancer Alliance (INCA) website fact sheet area for Arabic, Chinese (Mandarin), English, French, German, Hindi, Italian, Japanese, Russian and Spanish versions.

Symptoms

Understanding the Neuroendocrine System

Symptoms

Unexplained Weight Loss in NETs Patients

Fact Sheets
COMING SOON

VHL Belzutifan fact sheet

Booklets & Guides
COMING SOON

VHL Booklet

Fact Sheets
COMING SOON

VHL Questions to ask

Fact Sheets
COMING SOON

VHL Surveillance checklist

Fact Sheets
COMING SOON

VHL Treatments

Symptoms

Vision Changes in Neuroendocrine Tumours

Fact Sheets

Vitamin and mineral deficiencies

Support Groups

WA Support Groups

Educational Videos

Webinar – Anaesthetics and NETs

Educational Videos

Webinar – Hereditary Endocrine Neoplasms

Educational Videos, Explainer Videos

What is the Neuroendocrine System and how do Neuroendocrine Tumours develop?

Wellness

World Cancer Day: Honouring Every Unique Cancer Story

Advocacy & Awareness Videos

World NET Cancer Day Webinar 10 NOV 20

Walk, run, or ride this March4NETs!

For its third year, March4NETs will run throughout March 2026.

Get involved and support the 31,000 Australians living with neuroendocrine cancer.