Patient Resources

Our patient resources are designed to help you understand, manage, and live well with neuroendocrine cancer.

Here you’ll find practical tools and information to guide you through every stage of your journey, from diagnosis and treatment to living with neuroendocrine cancer day to day.

These resources are created and reviewed by experts to ensure they’re accurate, reliable, and easy to understand.

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If you are unsure of any information, please contact our NET Nurses on 1300 287 363 or speak with your healthcare professional.

Should you require fact sheets in another language please click through below to the International Neuroendocrine Cancer Alliance (INCA) website fact sheet area for Arabic, Chinese (Mandarin), English, French, German, Hindi, Italian, Japanese, Russian and Spanish versions.

Wellness

Sleep Hygiene

Fact Sheets

Somatostatin Analogues (SSAs)

Advocacy & Awareness Videos

Special event – Celebrating 25 years of Peptide Receptor Radionuclide Therapy (PRRT)

Fact Sheets

Staging and Grading of NETs

Clinical Trials

STELLAR-311

Assess the effectiveness of zanzalintinib compared to everolimus in participants with previously treated, unresectable, locally advanced or metastatic neuroendocrine tumours.
Wellness

Supporting the carers of people with Neuroendocrine cancer

Treatment Options
Fact Sheets

Surgery Fact Sheet

Advocacy & Awareness Videos

Suzie’s Story

Forum Videos

Sydney NET Patient Forum 2025

Booklets & Guides

Symptom Management and Treatment

Booklets & Guides

Symptoms and Signs

Symptoms

Symptoms of Rare NETs in Uncommon Locations

Educational Videos, Explainer Videos

Symptoms Types and Diagnosis of Neuroendocrine Tumours (NETs)

Educational Videos, Explainer Videos

Symptoms Types and Diagnosis of Neuroendocrine Tumours (NETs) – Arabic Translation

Educational Videos, Explainer Videos

Symptoms Types and Diagnosis of Neuroendocrine Tumours (NETs) – Mandarin Translation

Tax Appeal

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Help 31,000+ neuroendocrine cancer patients get the specialised care they deserve.

Every dollar raised is fully tax deductible and helps fund much needed advocacy efforts and patient support.