Advocacy

NeuroEndocrine Cancer Australia is governed by five pillars: patient support, education, research, awareness and advocacy.

These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

For a long time, NET cancer patients have not only suffered the physical and emotional burden of cancer, but also the indignity of being overlooked and abandoned by a system that has little interest in the rare or obscure.

Below are some ways we advocate for our patients.

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NECA attends launch of Nuclear Medicines Australia National Action Plan at Parliament House

NECA and patient advocates take MTC treatment access to Parliament

Raising awareness of neuroendocrine cancer at Peninsula Bays Hospital Wellness Day

Raising Awareness for NETs on World Cancer Day in WA

Australia delivers excellent cancer care, but not equally

AUS-NET Update, January 2026

CommNETs 2025

NECA attends Professionals Uplifting Patient Partnership (PUPP)’s final event of the year

NECA attends ACNNP Governance Group Day

Nuclear Medicine Round Table

Equitable Access to Cancer Care: Reflections from Parliament House

Patient and Consumer Roundtable on Comparator Selection in HTA

NECA Highlights Gaps in Government’s Senate Inquiry Response

PCPA Cancer Summit

SCAN 2025 is now open – we need your voice

Medicines Australia Horizon Scanning – Advancing Patient Access and Genomics

Walk, run, or ride this March4NETs!

For its third year, March4NETs will run throughout March 2026.

Get involved and support the 31,000 Australians living with neuroendocrine cancer.