Advocacy

NeuroEndocrine Cancer Australia is governed by five pillars: patient support, education, research, awareness and advocacy.

These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

For a long time, NET cancer patients have not only suffered the physical and emotional burden of cancer, but also the indignity of being overlooked and abandoned by a system that has little interest in the rare or obscure.

Below are some ways we advocate for our patients.

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Video to help pronounce “Neuroendocrine”

Editorial about financial toxicity of NET cancer

7th Annual International Neuroendocrine Cancer Alliance summit

Breakfast with Victorian Governor

CNSA Pre Congress Symposium

CNSA Annual Congress 2019 Melbourne

GP Information Collection Project

INCA welcomes new members

NET Registry and Patient App starts rollout

Multidisciplinary approach highlights Nurses role in NETs care

Let’s BE FAIR with government cancer funding

ENETs Overview

ENETS session – High grade classification

VCCC Monday Lunch Live events

NSW Ambulance Authorised Care Plans

Petition update

Walk, run, or ride this March4NETs!

For its third year, March4NETs will run throughout March 2026.

Get involved and support the 31,000 Australians living with neuroendocrine cancer.