Advocacy

NeuroEndocrine Cancer Australia is governed by five pillars: patient support, education, research, awareness and advocacy.

These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

For a long time, NET cancer patients have not only suffered the physical and emotional burden of cancer, but also the indignity of being overlooked and abandoned by a system that has little interest in the rare or obscure.

Below are some ways we advocate for our patients.

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University of South Australia -Volunteers needed nationally.

Expression-of-Interest for consumer participation on Grant Review Committees for the 2022 Priority-driven Collaborative Cancer Research Scheme

European Neuroendocrine Tumor Society (ENETS) 2022 Guidance Paper for Carcinoid Syndrome and Carcinoid Heart Disease

ENETS 2022

Wellness Day 2022

NECA proud to be an integral part of the AUSNET trial

Action plan support – short videos wanted!

Introducing Australian Rare Cancer Portal

Call Out for a Consumer Advisory Representative from Tasmania / South Australia

Call Out for a Consumer Advisory Representative from WA

Let’s ask for our government to “Be Fair” with funding

World NET Cancer Day 2019

INCA launches global survey for NET patients and HCPs

Brisbane NET Patient Forum

Hobart NET Patient Forum

Canberra NET Patient Forum

Walk, run, or ride this March4NETs!

For its third year, March4NETs will run throughout March 2026.

Get involved and support the 31,000 Australians living with neuroendocrine cancer.