Advocacy

NeuroEndocrine Cancer Australia is governed by five pillars: patient support, education, research, awareness and advocacy.

These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

For a long time, NET cancer patients have not only suffered the physical and emotional burden of cancer, but also the indignity of being overlooked and abandoned by a system that has little interest in the rare or obscure.

Below are some ways we advocate for our patients.

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Advancing VHL Care: Clinicians Unite for a Multidisciplinary Approach

NECA at ENETS 2025: Advancing NET Care on the Global Stage

AGIG Steps Up Again to Support March4NETs in 2025

Channel 7 reports on life changing access to Belzutifan for VHL Patients

CommNETs 2024 Conference

Belzutifan listed on PBS 1st December 2024

Steve and Jakes Everesting Challenge – thank you!

Racing for a Cure 2024

Meet with your local MP and help improve NET patient care.

AUS-NET October 2024 update

Biomarkers to Inform Prognosis and Treatment for Unresectable or Metastatic GEP-NENs

12th INCA Global NET Cancer Advocate Summit

NeuroEndocrine Cancer Australia Celebrates Groundbreaking PBS Recommendation of Life-Changing Treatment for Von Hippel-Lindau (VHL) Patients.

CanForum 2024 – A Rare Cancer Moonshot

VHL Awareness Event at Parliament House Highlights Urgent Need for Belzutifan Approval

NeuroEndocrine Cancer Australia (NECA) receives inaugural Government Grant for Specialist Support Services.

Walk, run, or ride this March4NETs!

For its third year, March4NETs will run throughout March 2026.

Get involved and support the 31,000 Australians living with neuroendocrine cancer.