Advocacy

NeuroEndocrine Cancer Australia is governed by five pillars: patient support, education, research, awareness and advocacy.

These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

For a long time, NET cancer patients have not only suffered the physical and emotional burden of cancer, but also the indignity of being overlooked and abandoned by a system that has little interest in the rare or obscure.

Below are some ways we advocate for our patients.

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VHL in the news March 2025

Bunbury Support Group raises awareness of March4NETs

Advancing VHL Care: Clinicians Unite for a Multidisciplinary Approach

NECA at ENETS 2025: Advancing NET Care on the Global Stage

AGIG Steps Up Again to Support March4NETs in 2025

Channel 7 reports on life changing access to Belzutifan for VHL Patients

CommNETs 2024 Conference

Belzutifan listed on PBS 1st December 2024

Steve and Jakes Everesting Challenge – thank you!

Racing for a Cure 2024

Meet with your local MP and help improve NET patient care.

AUS-NET October 2024 update

Biomarkers to Inform Prognosis and Treatment for Unresectable or Metastatic GEP-NENs

12th INCA Global NET Cancer Advocate Summit

NeuroEndocrine Cancer Australia Celebrates Groundbreaking PBS Recommendation of Life-Changing Treatment for Von Hippel-Lindau (VHL) Patients.

CanForum 2024 – A Rare Cancer Moonshot

Walk, run, or ride this March4NETs!

For its third year, March4NETs will run throughout March 2026.

Get involved and support the 31,000 Australians living with neuroendocrine cancer.