Advocacy

NeuroEndocrine Cancer Australia is governed by five pillars: patient support, education, research, awareness and advocacy.

These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

For a long time, NET cancer patients have not only suffered the physical and emotional burden of cancer, but also the indignity of being overlooked and abandoned by a system that has little interest in the rare or obscure.

Below are some ways we advocate for our patients.

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VHL Awareness Event at Parliament House Highlights Urgent Need for Belzutifan Approval

NeuroEndocrine Cancer Australia (NECA) receives inaugural Government Grant for Specialist Support Services.

2024 Brisbane NET Patient Forum Recap

Senate Inquiry Report Released with 41 Recommendations

Sign this life-changing petition to place Belzutifan on the PBS in Australia

NECA Team’s Advocacy Efforts Extend to 13 Industry Boards and working groups for Neuroendocrine Cancer Patients

Tamworth local Ryan Harding advocates for VHL patients to have access to Belzutifan

NET Patient Rob Hammond speaks at the Senate Inquiry hearing in Tasmania

NECA presents alongside Peter MacCallum Cancer Centre at the Senate Inquiry

Celebrating one year of the Optimal Care Pathway for people with NETs

NeuroEndocrine Cancer Australia are delighted to announce a new donor partnership.

Become a Cancer Connect Volunteer at NECA and make a meaningful Impact!

Launceston NET Patient Forum

Help us on NET Cancer Day

NET Cancer Day 2023

Equitable access for all NET patients

Walk, run, or ride this March4NETs!

For its third year, March4NETs will run throughout March 2026.

Get involved and support the 31,000 Australians living with neuroendocrine cancer.