Getting Diagnosed

Diagnosing neuroendocrine cancer often takes time, as symptoms can mimic other conditions.

Specialist tests are usually needed and may include blood and urine tests, imaging scans (such as CT, MRI, or PET), and sometimes a biopsy.

Being diagnosed with neuroendocrine cancer can be stressful, but understanding the process and knowing what to expect can help.

This page outlines the steps involved in diagnosis and highlights the importance of multidisciplinary care.

Symptoms

Neuroendocrine cancer symptoms can be vague, varied, or sometimes not present at all, which can make the disease difficult to recognise. Learn more about common symptoms and when to speak with your healthcare professional.

 

Diagnosis Process

Once neuroendocrine cancer is suspected, doctors gather detailed medical history, perform physical examinations, and review hormone levels. Imaging and biopsy results will then be assessed by a multidisciplinary team to confirm the diagnosis, determine tumour grade and stage, and guide the most appropriate treatment plan.

 

Treatment Options

Treatment for neuroendocrine cancer varies depending on the type, location, grade and stage of the tumour. Learn more about the available treatment options and what to expect along your treatment pathway by clicking the link below, or browse these relevant resources.

Scans & Tests

A range of specialised tests helps identify and monitor neuroendocrine cancer. These may include blood and urine tests to measure hormone levels, and imaging scans such as CT, MRI, or PET to locate and assess tumours. Together, they provide vital information to guide diagnosis and treatment.

Prognosis

Every neuroendocrine cancer diagnosis is unique. Prognosis depends on factors like tumour type, grade, and stage, as well as the overall health of the person. Advances in treatment mean many people live well with neuroendocrine cancer for years.

Helpful Resources

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