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Home » Patient Stories » Chris, VIC

Chris, VIC

My Story started in January 2023 when I stared feeling really unwell. I had abdominal pain, was going to the bathroom 10 to 12 times a day, and was tired all the time.

I went to my GP and was told that I probably had a bug and was given some strong anti-biotics.

By July 2023 the symptoms were getting worse to the point I had my first Emergency Department visit where I was admitted.
I had blood tests and CT scans but again they couldn’t find anything wrong and sent me on my way.

From July 2023 to October 2023 I was admitted three more times having every test, CT, MRI scan until one Doctor  said lets do a pet scan. Oct 19th 2023 the doctor came in and said “You have pancreatic neuroendocrine cancer”

I remember leaving the hospital getting in my car and googling the cancer and then I literally called NECA.

Looking back over the last few years the symptoms were always there but life gets in the way and you dismiss them.

To say I was in shock was an understatement. I was numb. I’m 42 years old with 2 children and a wife and family, I can’t get cancer.

We discussed options and I was referred to Peter Mac Cancer Centre in Melbourne who were amazing.

In January 2024 I underwent surgery to have a Whipple procedure to remove the tumours, all up part of the pancreas, first part of the small intestine, gallbladder, bile duct and about 33 lymph nodes.

My life has changed in a dramatic way and I’ve had to make so many adjustments and have a lifetime of scans to look forward to, but I’m still here and I’ll keep fighting. Its taught me that life is short, and the big C can affect anyone at any time.

My best advice? Advocate for yourself and don’t take no for an answer if you feel something is not right.
You just never know.

Patient Stories

Allison, W.A.

This experience has made me a firm believer in screening, early diagnosis, and specialist NET care. I feel incredibly lucky — and grateful — that my NET was found at such an early, treatable stage.

Cassie, QLD

I’m a 36-year-old mum of three little humans – things like this just doesn’t happen to people like me. Until all of a sudden it does, and everything changes

Lana, NSW

Blurry vision had led to a diagnosis of Von Hippel-Lindau (VHL) disease – a condition where multiple tumours grow in various parts of the body, including the brain, spinal cord, abdominal organs, and eyes.

Simon, VIC

We need greater awareness of VHL, better education for healthcare professionals, and up-to-date resources to guide patients through diagnosis and care.

View All

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