Skip to content
  • About
  • Shop
  • News
  • Contact Us
Search
NECA Logo
  • NET Nurse
  • Donate
  • What are NETs?
    • What are Neuroendocrine Cancers?
    • What are Pheos & Paras?
    • NET Symptoms
    • NET Types
    • Causes
    • Treatments
    • Grades
    • Diagnosis
    • Prognosis
    Consider the Grey Area
  • Patients & Carers
    • Patient & Carer Support
    • Patient Resources
    • Optimal Care Pathway
    • NET Nurse
    • Patient Stories
    • Share your Story
    • Australian NET Specialists
    • Clinical Trials
    • Living with NETS
    • Specialist Support Services
    Consider the Grey Area
  • Healthcare Professionals
    • Optimal Care Pathway
    • Professional Learning
    • Patient Referral
    • Clinical Trials
    • NET Symptoms
    • Australian NET Specialists
    • Request an In-Service
    • PLANET Registry
    • Order Booklets & Resources
    Consider the Grey Area
  • Get Involved
    • Advocate for Us
    • Share your Story
    • Donate
    • Fundraise
    • Events
    • In Memoriam
    • Corporate Partners
    • Gifts & Wills
    • Volunteer
    Senate MailChimp
  • March4NETs
NET Nurse
Donate

Home » Advocacy » Medicines Australia Horizon Scanning – Advancing Patient Access and Genomics

Home » Advocacy » Medicines Australia Horizon Scanning – Advancing Patient Access and Genomics

Medicines Australia Horizon Scanning – Advancing Patient Access and Genomics

  • September 3, 2025

NeuroEndocrine Cancer Australia CEO Meredith Cummins joined a panel discussion at the Medicines Australia Horizon Scanning event, accompanied by Media and External Relations Manager Ciara Connolly. The event brought together healthcare leaders, policymakers,

clinicians, and industry representatives to explore emerging opportunities in medicines and diagnostics, with a strong focus on genomics.

Meredith shared insights from the perspective of neuroendocrine cancer patients, highlighting the ongoing challenges in accessing treatments when PBS descriptors do not align with rare or less common cancer types. She emphasised the significant impact of delayed diagnoses, high out-of-pocket costs, and the lack of access to life-changing therapies available overseas. A key theme of the discussion was ensuring equitable access to all patients, regardless of the rarity of their cancer, and the importance of learning from international models to streamline approval and delivery processes in Australia.

The day’s conversations reinforced the critical role of genomics in shaping the future of personalised medicine. Attendees expressed excitement about the potential of Genomics Australia to enhance early diagnosis, target therapies more effectively, and align Australian practices with global standards, particularly the UK. The discussions also highlighted the importance of patient engagement, transparency in treatment costs, and developing a health system agile enough to adopt new therapies while supporting infrastructure, workforce, and equitable distribution across the country.

NeuroEndocrine Cancer Australia was pleased to network with other stakeholders, participate in panels and talks, and contribute to shaping strategies that could improve patient outcomes and access to precision therapies.

Share this post

Recent posts

13th INCA Global NET Patient Advocate Summit

September 16, 2025

PCPA Cancer Summit

September 12, 2025

SCAN 2025 is now open – we need your voice

September 8, 2025

NeuroEndocrine Cancer Australia at PharmaAus2025

September 3, 2025
Categories
  • Advocacy
  • Awareness
  • Community Events
  • Education
  • Events
  • Fundraising
  • General
  • In The Media
  • News
  • Research
  • Unicorn Events
PrevPreviousCanForum 2025: Now it’s personal: Access and equity for all
NextSCAN 2025 is now open – we need your voiceNext

Related Posts

PCPA Cancer Summit

  The Private Cancer Physicians of Australia (PCPA) hosted its Annual Meeting: Cancer Summit 2025 in Sydney on 13 September, bringing together clinicians, researchers, and

SCAN 2025 is now open – we need your voice

SCAN 2025 is now open – we need your voice.  As a proud member of the International Neuroendocrine Cancer Alliance (INCA), NeuroEndocrine Cancer Australia is excited

CanForum 2025: Now it’s personal: Access and equity for all

On 2nd September 2025, NeuroEndocrine Cancer Australia CEO Meredith Cummins and Media and External Relations Manager Ciara Connolly attended CanForum 2025, a leading national conference

National Patient Organisation Network (NPON)

  National Patient Organisation Network (NPON) was held at the Brisbane Convention Centre on Thursday 24 July 2025 which had 50 attendees. Our CEO attended

View All

Subscribe to Newsletter

NECA Logo
registered charity badge

What are NETs

  • About Us
  • Our People
  • Our Ambassadors
  • Consumer Advisory Group
  • International Advisory Panel
  • Governance & Policies
  • About Us
  • Our People
  • Our Ambassadors
  • Consumer Advisory Group
  • International Advisory Panel
  • Governance & Policies

Patients & Carers

  • What are Neuroendocrine Cancers?​
  • Pheos and Paras
  • NET Library
  • What are Neuroendocrine Cancers?​
  • Pheos and Paras
  • NET Library

Healthcare Professionals

  • Patient resources
  • NET Nurse
  • Patient Stories
  • Australian NET Specialists
  • Current Open Clinical Trials
  • Patient resources
  • NET Nurse
  • Patient Stories
  • Australian NET Specialists
  • Current Open Clinical Trials

Get Involved

  • Shop
  • Donate
  • Volunteer
  • Current Fundraising Campaigns
  • Fundraise
  • Shop
  • Donate
  • Volunteer
  • Current Fundraising Campaigns
  • Fundraise
All charity donations to NeuroEndocrine Cancer Australia may be tax-deductible in Australia.

Registered Charity CFN 202607
© 2025 NeuroEndocrine Cancer Australia
  • Website by Five Creative
Twitter Facebook Youtube Instagram Linkedin