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Home » Advocacy

Advocacy

NeuroEndocrine Cancer Australia is governed by five pillars: patient support, education, research, awareness and advocacy.

These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

For a long time, NET cancer patients have not only suffered the physical and emotional burden of cancer, but also the indignity of being overlooked and abandoned by a system that has little interest in the rare or obscure.

Below are some ways we advocate for our patients.

NET Patient Chris, from Ballarat, Raises Awareness of Neuroendocrine Cancer

May 5, 2025

Help Us Grow: Connect NECA with Corporate Partners to Make a Lasting Impact

April 29, 2025

Parliament House representation for Federal Budget briefings

March 27, 2025

VHL in the news March 2025

March 25, 2025

Bunbury Support Group raises awareness of March4NETs

March 17, 2025

Advancing VHL Care: Clinicians Unite for a Multidisciplinary Approach

March 15, 2025

NECA at ENETS 2025: Advancing NET Care on the Global Stage

March 10, 2025

AGIG Steps Up Again to Support March4NETs in 2025

February 25, 2025

Channel 7 reports on life changing access to Belzutifan for VHL Patients

January 29, 2025

CommNETs 2024 Conference

December 16, 2024

Belzutifan listed on PBS 1st December 2024

December 2, 2024

Steve and Jakes Everesting Challenge – thank you!

November 19, 2024

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