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Home » Advocacy

Advocacy

NeuroEndocrine Cancer Australia is governed by five pillars: patient support, education, research, awareness and advocacy.

These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

For a long time, NET cancer patients have not only suffered the physical and emotional burden of cancer, but also the indignity of being overlooked and abandoned by a system that has little interest in the rare or obscure.

Below are some ways we advocate for our patients.

Patient and Consumer Roundtable on Comparator Selection in HTA

October 27, 2025

NECA Highlights Gaps in Government’s Senate Inquiry Response

October 16, 2025

PCPA Cancer Summit

September 12, 2025

SCAN 2025 is now open – we need your voice

September 8, 2025

Medicines Australia Horizon Scanning – Advancing Patient Access and Genomics

September 3, 2025

CanForum 2025: Now it’s personal: Access and equity for all

September 2, 2025

National Patient Organisation Network (NPON)

July 24, 2025

ACCN Innovations Showcase 2025

July 8, 2025

Radio National Interview: Changing Australia June 2025

June 30, 2025

Adelaide NET Patient Forum 2025

June 24, 2025

CNSA & ICCN 2025 Congress: Global Voices, Local Actions

June 24, 2025

Announcing our First Patient Ambassador – Cassie Miller

June 17, 2025

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