Skip to content
  • About
  • Shop
  • News
  • Contact Us
Search
NECA Logo
  • NET Nurse
  • Donate
  • What are NETs?
    • What are Neuroendocrine Cancers?
    • What are Pheos & Paras?
    • NET Symptoms
    • NET Types
    • Causes
    • Treatments
    • Grades
    • Diagnosis
    • Prognosis
    Consider the Grey Area
  • Patients & Carers
    • Patient & Carer Support
    • Patient Resources
    • Optimal Care Pathway
    • NET Nurse
    • Patient Stories
    • Share your Story
    • Australian NET Specialists
    • Clinical Trials
    • Living with NETS
    • Specialist Support Services
    Consider the Grey Area
  • Healthcare Professionals
    • Optimal Care Pathway
    • Professional Learning
    • Patient Referral
    • Clinical Trials
    • NET Symptoms
    • Australian NET Specialists
    • Request an In-Service
    • PLANET Registry
    • Order Booklets & Resources
    Consider the Grey Area
  • Get Involved
    • Advocate for Us
    • Share your Story
    • Donate
    • Fundraise
    • Events
    • In Memoriam
    • Corporate Partners
    • Gifts & Wills
    • Volunteer
    Senate MailChimp
  • March4NETs
NET Nurse
Donate

Home » Fundraising » ENETs 2015 Wrap Up

ENETs 2015 Wrap Up

  • March 31, 2015
The 12th annual European Neuroendocrine Tumour Society (ENETS) scientific meeting was held in Barcelona, Spain in March. This meeting is recognised as the preeminent meeting where international NET experts gather to present and discuss the current research, treatments and issues regarding neuroendocrine cancers.

Dr John Leyden and Prof Kjell Oberg

This year’s meeting was particularly exciting with the presentation of four abstracts based on the global NET patient survey. The global NET patient survey which was a collaboration between the International Neuroendocrine Cancer Alliance (INCA) of which the Unicorn Foundation is a founding member and Novartis Oncology. The Unicorn Foundation, through its networks, email, facebook, NET nurse support service and website was able to recruit 138 patients (7%) for this phenomenal and world first survey that has capture the ‘quintessential’ NET patient journey. We now have a body of evidence derived from 1927 respondents worldwide that has highlighted the myriad of issues with NET, but more importantly, the areas in which we can direct resources so as to improve the patient journey with NET.

Jo Grey (AMEND UK), Dr John Leyden (UF AUS), Maia Sissons (NET Patient Foundation, UK), Allen Wilson (Paratrooper, Ireland)

Dr John Leyden has been involved in this survey from its inception and has been representing ‘Oceania’ as an author on the abstracts and presentations that have been published. We encourage our NET specialists to reference this data and our NET patients to print the abstracts and use them to help educate others about NET and the impact that this has on many aspects of a NET patient’s life.

Dr John Leyden

INCA and Novartis Global Survey Posters for download

https://neuroendocrine.org.au/wp-content/uploads/2020/03/ENETS-NETPatient-Experience_FINALPoster.pdf

https://neuroendocrine.org.au/wp-content/uploads/2020/03/ENETS-Poster_NET-Pt-Perspective_FNL.pdf 

https://neuroendocrine.org.au/wp-content/uploads/2020/03/ENETS-TimeToDiagnosis-FINALPoster.pdf 

https://neuroendocrine.org.au/wp-content/uploads/2020/03/ENETS_MDT_NETPtSurvey_FNL.pdf 

 

Share this post

Recent posts

ACCN Innovations Showcase 2025

July 8, 2025

Radio National Interview: Changing Australia June 2025

June 30, 2025

Adelaide NET Patient Forum 2025

June 24, 2025

CNSA & ICCN 2025 Congress: Global Voices, Local Actions

June 24, 2025
Categories
  • Advocacy
  • Awareness
  • Community Events
  • Education
  • Events
  • Fundraising
  • General
  • In The Media
  • News
  • Research
  • Unicorn Events
PrevPreviousSupport Us by Buying a Raffle Ticket
NextThank you to Fowles Wine 2015Next

Related Posts

2025 Impact Report

This year, NeuroEndocrine Cancer Australia continued to expand our reach and impact thanks to the incredible support of our community. Click below to read the

Help Us Grow: Connect NECA with Corporate Partners to Make a Lasting Impact

NeuroEndocrine Cancer Australia (NECA) is proud to be the voice for thousands of Australians living with Neuroendocrine Cancer (NETs). But to do more — reach

The David Trophy 2025

Many thanks to David Spears for organising The David Trophy for it’s fourth year! In advance of reading this story, there are two NET patients

AGIG Steps Up Again to Support March4NETs in 2025

Exciting news! Australian Gas Infrastructure Group (AGIG) has once again partnered with NeuroEndocrine Cancer Australia (NECA) to support the second annual March4NETs fundraiser. We are

View All

Subscribe to Newsletter

NECA Logo
registered charity badge

What are NETs

  • About Us
  • Our People
  • Our Ambassadors
  • Consumer Advisory Group
  • International Advisory Panel
  • Governance & Policies
  • About Us
  • Our People
  • Our Ambassadors
  • Consumer Advisory Group
  • International Advisory Panel
  • Governance & Policies

Patients & Carers

  • What are Neuroendocrine Cancers?​
  • Pheos and Paras
  • NET Library
  • What are Neuroendocrine Cancers?​
  • Pheos and Paras
  • NET Library

Healthcare Professionals

  • Patient resources
  • NET Nurse
  • Patient Stories
  • Australian NET Specialists
  • Current Open Clinical Trials
  • Patient resources
  • NET Nurse
  • Patient Stories
  • Australian NET Specialists
  • Current Open Clinical Trials

Get Involved

  • Shop
  • Donate
  • Volunteer
  • Current Fundraising Campaigns
  • Fundraise
  • Shop
  • Donate
  • Volunteer
  • Current Fundraising Campaigns
  • Fundraise
All charity donations to NeuroEndocrine Cancer Australia may be tax-deductible in Australia.

Registered Charity CFN 202607
© 2025 NeuroEndocrine Cancer Australia
  • Website by Five Creative
Twitter Facebook Youtube Instagram Linkedin