Twitter Facebook-f Youtube Instagram Linkedin
NETs Info
Donate
Close Menu
  • Who We Are
    • About Us
    • Our People
    • Our Board
    • Our Ambassadors
    • Consumer Advisory Group
    • Research Advisory Panel
    • Governance & Policy
  • Neuroendocrine Cancers
    • What are Neuroendocrine Cancers?
    • Patient Resources
    • Pheos and Paras
    • NET Library
  • I Am a Patient
    • Patient Support
    • Patient Resources
    • NET Nurse
    • Patient Stories
    • Australian NET Specialists
    • Current Clinical Trials
  • I am a HCP
    • Professional Learning
    • HCP – Patient Referral to NET Nurse
    • Current Clinical Trials
    • NET Library
    • HCP Newsletter & Signup
    • Australian NET Specialists
    • Request an In-Service
    • PLANET Registry
    • Order booklets and other resources
  • Get Involved
    • NET National Action Plan
    • Share your story
    • Donate
    • Fundraise
    • In Memoriam
    • Corporate Partners
    • Bequests
    • Workplace Giving
    • Volunteer
  • What’s On
    • News
    • Newsletter & Signup
    • INCA Newsletter archive
    • Events
  • Shop
  • Contact Us
Donate
  • Who We Are
    • About Us
    • Our People
    • Our Board
    • Our Ambassadors
    • Consumer Advisory Group
    • Research Advisory Panel
    • Governance & Policy
  • Neuroendocrine Cancers
    • What are Neuroendocrine Cancers?
    • Patient Resources
    • Pheos and Paras
    • NET Library
  • I Am a Patient
    • Patient Support
    • Patient Resources
    • NET Nurse
    • Patient Stories
    • Australian NET Specialists
    • Current Clinical Trials
  • I am a HCP
    • Professional Learning
    • HCP – Patient Referral to NET Nurse
    • Current Clinical Trials
    • NET Library
    • HCP Newsletter & Signup
    • Australian NET Specialists
    • Request an In-Service
    • PLANET Registry
    • Order booklets and other resources
  • Get Involved
    • NET National Action Plan
    • Share your story
    • Donate
    • Fundraise
    • In Memoriam
    • Corporate Partners
    • Bequests
    • Workplace Giving
    • Volunteer
  • What’s On
    • News
    • Newsletter & Signup
    • INCA Newsletter archive
    • Events
  • Shop
  • Contact Us

Home » Fundraising » ENETs 2015 Wrap Up

ENETs 2015 Wrap Up

  • March 31, 2015
The 12th annual European Neuroendocrine Tumour Society (ENETS) scientific meeting was held in Barcelona, Spain in March. This meeting is recognised as the preeminent meeting where international NET experts gather to present and discuss the current research, treatments and issues regarding neuroendocrine cancers.

Dr John Leyden and Prof Kjell Oberg

This year’s meeting was particularly exciting with the presentation of four abstracts based on the global NET patient survey. The global NET patient survey which was a collaboration between the International Neuroendocrine Cancer Alliance (INCA) of which the Unicorn Foundation is a founding member and Novartis Oncology. The Unicorn Foundation, through its networks, email, facebook, NET nurse support service and website was able to recruit 138 patients (7%) for this phenomenal and world first survey that has capture the ‘quintessential’ NET patient journey. We now have a body of evidence derived from 1927 respondents worldwide that has highlighted the myriad of issues with NET, but more importantly, the areas in which we can direct resources so as to improve the patient journey with NET.

Jo Grey (AMEND UK), Dr John Leyden (UF AUS), Maia Sissons (NET Patient Foundation, UK), Allen Wilson (Paratrooper, Ireland)

Dr John Leyden has been involved in this survey from its inception and has been representing ‘Oceania’ as an author on the abstracts and presentations that have been published. We encourage our NET specialists to reference this data and our NET patients to print the abstracts and use them to help educate others about NET and the impact that this has on many aspects of a NET patient’s life.

Dr John Leyden

INCA and Novartis Global Survey Posters for download

https://neuroendocrine.org.au/wp-content/uploads/2020/03/ENETS-NETPatient-Experience_FINALPoster.pdf

https://neuroendocrine.org.au/wp-content/uploads/2020/03/ENETS-Poster_NET-Pt-Perspective_FNL.pdf 

https://neuroendocrine.org.au/wp-content/uploads/2020/03/ENETS-TimeToDiagnosis-FINALPoster.pdf 

https://neuroendocrine.org.au/wp-content/uploads/2020/03/ENETS_MDT_NETPtSurvey_FNL.pdf 

 

Share this post

Subscribe to our eNews

Stay up to date on news and events, clinical trials and new research on neuroendocrine cancers.

Recent posts

NeuroEndocrine Cancer Australia partners with Opyl

June 30, 2022

5HIAA Urine Collection Instructions for Patients

June 23, 2022

Donor Report 2021/2022

June 21, 2022

Cancer Nurses Society of Australia 24th Annual Congress

June 18, 2022
Categories
  • Advocacy
  • Awareness
  • Community Events
  • Education
  • Events
  • Fundraising
  • General
  • In The Media
  • News
  • Research
  • Unicorn Events
PrevPreviousSupport Us by Buying a Raffle Ticket
NextThank you to Fowles WineNext

Related Posts

NeuroEndocrine Cancer Australia partners with Opyl

Today Opyl Ltd announced the signing of a partnership with NeuroEndocrine Cancer Australia with the goal of creating greater awareness about Neuroendocrine cancer and access

5HIAA Urine Collection Instructions for Patients

Your doctor may order you to do a 5HIAA 24 hour urine test. Please click below to see the downloadable instruction sheet. Previously there were

Donor Report 2021/2022

It is with heartfelt gratitude that we thank our kind donors who enable us to continue to do what we do. We encourage you to

Cancer Nurses Society of Australia 24th Annual Congress

The 24th Cancer Nurses Society of Australia’s  (CNSA) Annual Congress took place at Brisbane Convention Centre Thursday 16 June to Saturday 18 June 2022. The

View All

Make a difference

How much do you wish to donate?
$50
$100
$250
$500
$1000
Other
NeuroEndocrine Cancer Australia logo white
Twitter Facebook-f Youtube Instagram Linkedin

All donations are tax deductible.
Registered Charity CFN 202607

Who We Are

  • About Us
  • Our People
  • Our Ambassadors
  • Consumer Advisory Group
  • Research Advisory Panel
  • Governance & Policies
Menu
  • About Us
  • Our People
  • Our Ambassadors
  • Consumer Advisory Group
  • Research Advisory Panel
  • Governance & Policies

Neuroendocrine Cancers

  • What are Neuroendocrine Cancers?​
  • Pheos and Paras
  • NET Library
Menu
  • What are Neuroendocrine Cancers?​
  • Pheos and Paras
  • NET Library

For Patients

  • Patient resources
  • NET Nurse
  • Patient Stories
  • Australian NET Specialists
  • Current Open Clinical Trials
Menu
  • Patient resources
  • NET Nurse
  • Patient Stories
  • Australian NET Specialists
  • Current Open Clinical Trials

Get Involved

  • Shop
  • Donate
  • Volunteer
  • Current Fundraising Campaigns
  • Fundraise
Menu
  • Shop
  • Donate
  • Volunteer
  • Current Fundraising Campaigns
  • Fundraise

© 2020 NeuroEndocrine Cancer Australia

  • Website by Five Creative