Skip to content
Twitter Facebook-f Youtube Instagram Linkedin
NETs Info
Donate
Close Menu
  • Who We Are
    • About Us
    • Our People
    • Our Board
    • Our Ambassadors
    • Consumer Advisory Group
    • International Advisory Panel
    • Governance & Policy
  • Neuroendocrine Cancers
    • What are Neuroendocrine Cancers?
    • Patient Resources
    • Pheos and Paras
    • NET Library
  • I Am a Patient
    • Patient Support
    • Patient Resources
    • NET Nurse
    • Patient Stories
    • Australian NET Specialists
    • Current Clinical Trials
  • I am a HCP
    • Professional Learning
    • HCP – Patient Referral to NET Nurse
    • Current Clinical Trials
    • NET Library
    • HCP Newsletter & Signup
    • Australian NET Specialists
    • Request an In-Service
    • PLANET Registry
    • Order booklets and other resources
  • Get Involved
    • Advocate for us
    • Share your story
    • Donate
    • Fundraise
    • In Memoriam
    • Corporate Partners
    • Gifts & Wills
    • Workplace Giving
    • Volunteer
  • What’s On
    • News
    • Newsletter & Signup
    • INCA Newsletter archive
    • Events
  • Shop
  • Contact Us
Donate
  • Who We Are
    • About Us
    • Our People
    • Our Board
    • Our Ambassadors
    • Consumer Advisory Group
    • International Advisory Panel
    • Governance & Policy
  • Neuroendocrine Cancers
    • What are Neuroendocrine Cancers?
    • Patient Resources
    • Pheos and Paras
    • NET Library
  • I Am a Patient
    • Patient Support
    • Patient Resources
    • NET Nurse
    • Patient Stories
    • Australian NET Specialists
    • Current Clinical Trials
  • I am a HCP
    • Professional Learning
    • HCP – Patient Referral to NET Nurse
    • Current Clinical Trials
    • NET Library
    • HCP Newsletter & Signup
    • Australian NET Specialists
    • Request an In-Service
    • PLANET Registry
    • Order booklets and other resources
  • Get Involved
    • Advocate for us
    • Share your story
    • Donate
    • Fundraise
    • In Memoriam
    • Corporate Partners
    • Gifts & Wills
    • Workplace Giving
    • Volunteer
  • What’s On
    • News
    • Newsletter & Signup
    • INCA Newsletter archive
    • Events
  • Shop
  • Contact Us

Home » Education » Adelaide NET Patient Education Forum

Adelaide NET Patient Education Forum

  • November 28, 2019

Our final NET Patient Forum for 2019 was held at SAHMRI at Adelaide University on Thursday, 14 November 2019. This was very well attended by more than 40 patients, carers and health professionals. The forum was also videoed for those who could not attend, and will be available on YouTube soon.

The forum commenced with Prof Tim Price (Queen Elizabeth Hospital) giving an overview of NETs and an update on Medical Management of NETS.  This was very comprehensive and explained the diversity of treatments now available.

The next speaker was Dr Gabby Cehic. Gabby, who, despite having technical difficulties with the PowerPoint presentation, delivered a very informative and engaging update on Nuclear Management of NETs.

Simone Leyden (CEO Unicorn Foundation) provided an update on what is happening at the Unicorn Foundation and projects – current and future. During her presentation Simone spoke about the PLANET Registry and the App, which is hoped to be rolled out at Queen Elizabeth Hospital in the very near future (early 2020.) To date the registry is active at Peter MacCallum (VIC) and Royal North Shore (NSW) is about to distribute unique codes for patients to access the app. The other sites, Fiona Stanley Hospital (WA) and Royal Brisbane and Women’s Hospital (QLD) will be active early 2020.

Holly Evans emphasized the importance of Exercise Physiology for NET patients and maintaining a good quality of life in the next presentation. Holly highlighted potential research which could be done and we are keen to look at ways this can be achieved collaboratively.

Polly Baldwin from Cancer Council SA spoke about the resources and information the Cancer Council   provides to the Forum attendees.  Kate Wakelin was the final speaker and presented information about diet and living well with NETS.

We then opened the floor for Questions and Answers from the attendees. There were questions around current trials being conducted and also information requested about the use of Medicinal Cannabis. As much of the prescribing to date of Medicinal Cannabis has been via Clinical Trials, there was good discussion about the indications and criteria for use. There were general questions asked about treatments and options and also about the use of the patient app.

We are very grateful to the Cancer Council SA for providing the refreshment prior to the forum. The venue and the catering were fabulous. We are also very grateful to Jackie Barreau and Kathy Hatzi for their assistance with the evening – especially Jackie’s photography expertise.

Report by Meredith Cummins (Unicorn Foundation – Project Officer)

 

Share this post

Subscribe to our eNews

Stay up to date on news and events, clinical trials and new research on neuroendocrine cancers.

Recent posts

World Cancer Day 2023

January 10, 2023

Support Groups Christmas Gatherings

December 20, 2022

NeuroEndocrine Cancer Australia & Norman Family Trust Partnership

December 14, 2022

NeuroEndocrine Cancer Australia partners with Gathered Here to provide the NET community with free online Wills

December 14, 2022
Categories
  • Advocacy
  • Awareness
  • Community Events
  • Education
  • Events
  • Fundraising
  • General
  • In The Media
  • News
  • Research
  • Unicorn Events
PrevPreviousInternational Journal of Cancer Publication
NextWagga Wagga Patient NET ForumNext

Related Posts

Clinical Oncology Society of Australia (COSA) Conference, 2-4 Nov 2022

This week NECA attended the Clinical Oncology Society of Australia’s (COSA) Annual Scientific meeting in Brisbane, directly following the NET Patient Forum the evening prior.

Brisbane NET Patient Forum November 2022

After a long period of no face to face events due to COVID, NECA facilitated a NET Patient Education Forum, Tuesday 1 November 2022, at

Can Forum 2022

Great couple of days in Canberra attending Can Forum 2022 organised by Rare Cancers Australia and Canteen Australia. The theme for this years forum was:

NECA Finalist as NGO of the Year in Prime Awards

We’re thrilled to be announced as one of the finalists in the NGO of The Year category in the 2022 PRIME Awards Australia. The Prime

View All

Make a difference

How much do you wish to donate?
$50
$100
$250
$500
$1000
Other
NeuroEndocrine Cancer Australia logo white
Twitter Facebook-f Youtube Instagram Linkedin

All donations are tax deductible.
Registered Charity CFN 202607

Who We Are

  • About Us
  • Our People
  • Our Ambassadors
  • Consumer Advisory Group
  • International Advisory Panel
  • Governance & Policies
  • About Us
  • Our People
  • Our Ambassadors
  • Consumer Advisory Group
  • International Advisory Panel
  • Governance & Policies

Neuroendocrine Cancers

  • What are Neuroendocrine Cancers?​
  • Pheos and Paras
  • NET Library
  • What are Neuroendocrine Cancers?​
  • Pheos and Paras
  • NET Library

For Patients

  • Patient resources
  • NET Nurse
  • Patient Stories
  • Australian NET Specialists
  • Current Open Clinical Trials
  • Patient resources
  • NET Nurse
  • Patient Stories
  • Australian NET Specialists
  • Current Open Clinical Trials

Get Involved

  • Shop
  • Donate
  • Volunteer
  • Current Fundraising Campaigns
  • Fundraise
  • Shop
  • Donate
  • Volunteer
  • Current Fundraising Campaigns
  • Fundraise

© 2020 NeuroEndocrine Cancer Australia

  • Website by Five Creative