Cathy’s symptoms were fatigue, diarrhoea and anxiety.
Do you know the symptoms of neuroendocrine cancer?
I went and got the diagnosis alone. Probably not a good idea. You hear the first words, ‘You’ve got cancer’ and then you don’t hear another word after that.
Brian had really no clear symptoms (of Neuroendocrine Cancer) and if he hadn’t complained about a sore arm I am not sure what would have happened.
Belzutifan. It is very expensive. What is the point of having the medication if no one can use it? We really want to get this (Belzutifan) accessible for everyone. This medication helps a lot of people, not just VHL, it helps people who have kidney cancer, pancreatic cysts, brain tumours, and kidney tumours.
The diagnosis of a PNET has changed the way I look at life, and I am extremely grateful for the cutting edge research the oncologists bring to the table when treating the disease.
