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Home » Patient Stories » Kathy Hatzi

Kathy Hatzi

Kathy Hatzi

1.      What impact has NETs had on your life?

It has made me really take notice of and appreciate life. Rather than getting upset and sweating the small stuff it brings the priorities into focus and has given me perspective. It has also given me the opportunity to offer support and understanding to others which I enjoy.

2.      What drew you to become involved as a Support Group Facilitator?

I was roped into it by Brydie and Jamie but I don’t regret it for a moment. Our group was not offering anything or achieving much so I was happy to try and change that.  I realise support groups are not for everyone but it worried me that if patients did have a need they weren’t hearing about us or if they did there wasn’t any real connections being made.  I have experience in life coaching and facilitation so thought those skills would prove useful.  We now have a great group. All very caring, supportive, sharing and welcoming.

3.      What advice would you to give to a newly diagnosed patient?  What has been most helpful to you in your NET experience?

Find out as much as you can from people who have been through the same experience and be comfortable enough to ask your Dr everything. Take a breath and recognise it is usual to go through a grieving period when first being diagnosed.  However, remember not only is this a rare type of cancer it is also very unique.  We will all share similarities but each of us will have a slightly different journey and experience.

The most helpful thing to me was talking to someone who had been living with NETs for 20 years. Listening to hers and others experiences and tapping into their knowledge was reassuring and comforting.

Patient Stories

Patricia, NSW

There’s such little awareness about this cancer, even among medical professionals. I’ve had GPs say to me, “I’ve never seen a neuroendocrine cancer patient in my life.” And I tell them, “You probably have — you just didn’t diagnose them.”

Jo, QLD

In that moment, everything just crumbled. One minute, I was thinking I’d be home in a day or two. The next, I was being told I had stage-four, inoperable cancer.

Bronwyn, NSW

I encourage everyone to share their story—on the NeuroEndocrine Cancer Australia website and within their own communities—so that NETs is recognised and diagnosed earlier. I also encourage fundraising for NeuroEndocrine Cancer Australia if possible.

Chris, WA

I have worked in healthcare my entire life I had never heard of NETs until my diagnosis and I’m pretty sure none of the doctors I had seen in the lead up to diagnosis knew about it either.

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