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Home » Patient Stories » Paul, NSW

Paul, NSW

This story is about my husband Paul.

Paul was admitted to St Vincent’s Private Hospital on 27/11/2008 for a Robotic Prostatectomy. As soon as the cameras were inserted they found a tumour on his small bowel. When the Prostatectomy was finished they bought in a Gastroenterologist who performed a Right Hemicolectomy, this we were told was Carcinoid Cancer. Paul was in the operating theatre for about 8 hours that day. As soon as he woke his words were “they found something else”? He had been on the rounds with Doctor’s for years trying to find out what was wrong with his stomach.

Surgery was performed again in April, 2009 as Paul also had Kidney Cancer (unrelated). He had a Partial Nephrectomy and whilst they had him open the Gastroenterologist came in an removed the Carcinoid infected Lymph Glands.

His cancer remained stable through the years having Lutate Therapy in 2013 and monthly Sandostatin Lar 30mg injections.

Paul has had many hiccups along the way, the biggest one being the loss of his ability to store Vitamin K due to the Sandostatin. July this year Paul awoke having a seizure. CT scans showed an Acute nontraumatic subdural haematoma. After 17 days in Royal North Shore Hospital he is now on the mend. Vitamin K tablets taken daily have his blood clotting normally.

Paul’s recovery from this latest set back has been slow but through all this his cancer has remained stable.

Written by Paul’s wife, Kerrie

Patient Stories

Patricia, NSW

There’s such little awareness about this cancer, even among medical professionals. I’ve had GPs say to me, “I’ve never seen a neuroendocrine cancer patient in my life.” And I tell them, “You probably have — you just didn’t diagnose them.”

Jo, QLD

In that moment, everything just crumbled. One minute, I was thinking I’d be home in a day or two. The next, I was being told I had stage-four, inoperable cancer.

Bronwyn, NSW

I encourage everyone to share their story—on the NeuroEndocrine Cancer Australia website and within their own communities—so that NETs is recognised and diagnosed earlier. I also encourage fundraising for NeuroEndocrine Cancer Australia if possible.

Chris, WA

I have worked in healthcare my entire life I had never heard of NETs until my diagnosis and I’m pretty sure none of the doctors I had seen in the lead up to diagnosis knew about it either.

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