Patient Support Groups

 

The Unicorn Foundation has established patient support groups across Australia, as well as an active Facebook Private Discussion Group and linkages to Cancer Council Telephone Support Groups

Being diagnosed with cancer can be a scary and confronting experience. Being diagnosed with Neuroendocrine or Carcinoid cancer is even more confusing and daunting due to the lack of information and resources readily available. Therefore one of the main aims of the Unicorn Foundation is to provide support to patients by bringing them together in a relaxed yet informative environment.

Find a Support Group 

Click on the relevant state on the map of Australia to locate your closest support group. If you are interested in joining our Facebook group, or would like to assist in organizing or facilitating a patient support group, then please contact us at netnurse@neuroendocrine.org.au.

Click here to find out more about Telephone Support Groups for those with Advanced Cancer and for Carers.

New South Wales and ACT

North Shore Private Hospital 

Location
North Shore Private Hospital 
Ground Floor Conference Room
Westbourne Street
St Leonards

Contact
NET Nurse
T 1300 CURE NETS (1300 287 363)
E  netnurse@neuroendocrine.org.au

Dates/Times – 2017 
Wednesday 8th February – 5.00 – 7.00pm
Wednesday 12th April – 5.00 – 7.00pm
Wednesday 14th June – 5.00 – 7.00pm
Wednesday 9th August – 5.00 – 7.00pm
Wednesday 11th October –  5.00 – 7.00pm
Wednesday 13th December – 5.00 – 7.00pm

Sydney Adventist Hospital (SAN)

 

Location
Cancer Support Centre
Jacaranda Lodge
SAN -185 Fox Valley Rd, Wahroonga NSW 2076

Contact
NET Nurse
T 1300 CURE NETS (1300 287 363)
E  netnurse@neuroendocrine.org.au

Dates/Times 2017
Thursday 19th January – 1.30 – 3.00pm
Thursday 16th March – 1.30 – 3.00pm
Thursday 18th May – 1.30 – 3.00pm
Thursday 20th July – 1.30 – 3.00pm
Thursday 21st September – 1.30 – 3.00pm
Thursday 16th November – 1.30 – 3.00pm

St George Hospital

Location
St George Hospital 
Ground Floor
Research and Education Centre
South Street
Kogarah
(just beside the car park)

Contact 
NET Nurse 
T 1300 CURE NETS (1300 287 363) 
E  netnurse@neuroendocrine.org.au

Dates/Times – 2017  –

Monday 1st May 2017 2:00pm – 4:00pm
Monday 7th August 2017 2:00pm – 4:00pm
Monday 6th November 2017 2:00 – 4:00pm

Coffs Harbour

 

Contact
NET Nurse
T 1300 CURE NETS (1300 287 363)
E  netnurse@neuroendocrine.org.au

Dates/Times 2017
Wednesday 8th February – 1.00 – 3.00pm
Wednesday 12th April – 1.00 – 3.00pm
Wednesday 14th June – 1.00 – 3.00pm
Wednesday 9th August – 1.00 – 3.00pm
Wednesday 11th October – 1.00 – 3.00pm
Wednesday 13th December – 1.00 – 3.00pm

Canberra 

 

The Raiders Club,
1 Liardet Street,
Weston, ACT

Contact 
NET Nurse 
 T 1300 CURE NETS (1300 287 363) 
 E  netnurse@neuroendocrine.org.au

Dates/Times 2017
Thursday 13th July – 10am 
Thursday 17th August  – 10am
Thursday 28th September – 10am
Thursday 26th October – 10am
Thursday 23rd November – 10am

Victoria

Kew (Melbourne) 

Location
Phyllis Hore Room
Kew Library
Corner Cotham Road and Civic Drive
Kew

Contact
NET Nurse
T 1300 CURE NETS (1300 287 363)
E  netnurse@neuroendocrine.org.au

Dates/Times 2017
Tuesday 7th February – 5.30 – 7.30pm

Special Event: Tour of Olivia Newton-John Wellness Centre

Level 3 Rear
Olivia Newton-John Cancer, Wellness & Research Centre
145 Studley Road
Heidelberg VIC 3084

Tuesday 4th April – 5.30 – 7.30pm
Wednesday 7th June – 5.30 – 7.30pm (please note change of day to Wednesday)
Tuesday 1st August – 5.30 – 7.30pm
Tuesday 17th October – 5.30 – 7.30pm
Tuesday 5th December – 5.30 – 7.30pm

 

Queensland

Fortitude Valley (Brisbane) 

 

Location
Auditorium
QLD Cancer Council
553 Gregory Terrace
Fortitude Valley

Contact 
NET Nurse 
T 1300 CURE NETS (1300 287 363) 
E  netnurse@neuroendocrine.org.au

Dates/Times 2017
Tuesday 7th February – 2.00 – 5.00pm
Tuesday 4th April – 2.00 – 5.00pm
Tuesday 13th June – 2.00 – 5.00pm
Tuesday 8th August – 2.00 – 5.00pm
Tuesday 10th October – 2.00 – 5.00pm
Tuesday 5th December – 2.00 – 5.00pm

 

South Australia

Eastwood (Adelaide) 

Location
Cancer Council Australia
202 Greenhill Road
Eastwood

Contact
NET Nurse
T 1300 CURE NETS (1300 287 363)  
E  netnurse@neuroendocrine.org.au

Dates/Times 2017
Tuesday 7th February – 3.00 – 5.00pm Featuring guest speaker Venecia Willenberg (Specialist Nurse) on "Multidisciplinary Care"
Tuesday 4th April – 3.00 – 5.00pm – Featuring guest speaker Dr. Dainik Patel, Medical Oncologist (Queen Elizabeth Hospital)
Wednesday 14th June (Patient Forum, details to follow, please note different day to normal meeting)
Tuesday 1st August – 3.00 – 5.00pm Featuring guest speaker Joy Althorpe (Senior Clinical Psychologist from Integra Psychological Centre) who will discuss psychological support when dealing with cancer and its issues.
Tuesday 3rd October – 3.00 – 5.00pm
Tuesday 5th December – 3.00 – 5.00pm

Tasmania

Hobart Neuroendocrine Tumour Support Group 

Location
Cancer Support Centre
Level 1, A Block.
Royal Hobart Hospital,
Liverpool Street,
Hobart

Contact
NET Nurse
T 1300 CURE NETS (1300 287 363)  
E  netnurse@neuroendocrine.org.au

Dates/Times 2017
Tuesday 29th August – 1.30pm – 3.30pm
Tuesday 10th October – 1.30pm – 3.30pm
Tuesday 12th December – 1.30pm – 3.30pm

The Northern Tasmania NET Support Group 

Location
Launceston Cancer Support Centre (Cancer Council TAS)
69 – 71 Howick Street
Launceston

Contact
NET Nurse
T 1300 CURE NETS (1300 287 363)  
E  netnurse@neuroendocrine.org.au

Dates/Times 2017
Wednesday 6th September, 2 – 4pm
Wednesday 4th October, 2 – 4pm
Wednesday 1st November, 2 – 4pm
Wednesday 6th December, 2 – 4pm

Western Australia

Murdoch (WA) 

 

Please note this new location:
Meeting Room G7
Education Building
Fiona Stanley Hospital

Contact
NET Nurse
T 1300 CURE NETS (1300 287 363)
E netnurse@neuroendocrine.org.au  

Dates/Times 2017 
Wednesday 8th February – 6.00 – 8.00pm
Wednesday 5th April – 6.00 – 8.00pm – Featuring Guest Speaker Dr Richard Gauci from Sir Charles Gairdner Hospital Nuclear Medicine
Wednesday 28th June – 6.00 – 8.00pm
Wednesday 2nd August – 6.00 – 8.00pm
Wednesday 4th October – 6.00 – 8.00pm
Wednesday 29th November – 6.00 – 8.00pm

Telephone Support Groups

Telephone Support Groups are held twice a month (details below). Referrals or direct enquiries can be made by calling 1300 755 632 or by emailing: tsg@nswcc.org.au Name and phone number are required to access this service.

Advanced Cancer TSG
This group is suitable for people with any cancer type that has moved into other organs or areas of the body and is diagnosed as ‘Advanced’, ‘Terminal’ or ‘Metastasised'. For people with NETs, this group may be helpful when their tumours are no longer responding to treatment (as people with 'Advanced' NETs can be stable for many years)

Carers TSG
This group is suitable for the primary carer of someone with cancer. The diagnosis can be of any cancer type and the relationship of the carer to the patient could be partner, spouse, parent or (adult) child.