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Von Hippel-Lindau (VHL) Parliamentary Event

NECA has invited you to the following meeting: Von Hippel-Lindau (VHL) Parliamentary Event which will be held on 4th July 2024 at Parliament House – Dorothy Tangney Alcove.

Please note a valid photo identification will be required to check in.

View Meeting Agenda

When

4 July 2024
10:00 am-12:00 pm

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Where

Dame Dorothy Tangney Alcove

Parliament Drive Canberra

Registration

Registration will close by 27th June 2024

Confirmation of registration will be provided following completion of the registration process.
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Agenda

Von Hippel Lindau Syndrome Parliamentary Event

Thursday 4 July 2024
10am – 12pm

Dame Dorothy Tangney Alcove – APH – the area can hold 80 people in banquet style.

 ProgramSpeaker
10am – 10.30amArrival – Tea / Coffee – morning tea 
10.30amWelcome by Host MP, NECA

Hon Zali Steggall MP

Meredith Cummins CEO

10.35amOpening of EventHon Ged Kearney MP
10.45am

Panel Facilitator & welcome panelists

A/Prof Kathy Tucker (Genetic Specialist)
Dr Minmin Li (Genetic Specialist)
Dr John Leyden (Anesthetist / family member)
Ryan Harding (VHL patient)
Chris Jankulovski (VHL patient)
Amelia Ramsay (VHL patient)

Michael Usher

(NECA Ambassador)

11.30amOpen for Q&AAll in attendance
12.00pmClose of Event

Hon Zali Steggall MP

Meredith Cummins CEO

Register Now
Please note a valid photo identification will be required to check in.