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Home » High-Level Strategic Plan

NECA High-Level
Strategic Plan 2023 - 2025

Download National Action Plan
Download Strategic Plan

Our Purpose

To raise awareness and understanding of neuroendocrine tumours (NETs), both within the medical profession and the wider Australian public, and provide support to our NET community.

Our Mission

To assist and support patients and carers; lobby for new, appropriate treatments and investigations; raise awareness and knowledge of NETs within the medical community and general public and encourage and support NET Research.

Our Vision

Our vision continues to be the
champions of earlier diagnosis
and a cure for neuroendocrine
cancer.

Our Values

Nurture

Cultivate growth and compassion through patient care and support.

Empower

Ignite confidence to create positive change.

Care

Demonstrate genuine concern and empathy for the well-being of others.

Accountable

Take responsibility for our actions with integrity and transparency.

Our Pillars

We will achieve the strategic priorities through activities that fall within our pillars.

Support

Education

Awareness

Research

Advocacy

Strategic Priorities

These priorities will set the goals we are aiming to achieve in the next 3 years (2023 – 2025).

2023 Goals

2024 Goals

2025 Goals

Support
Increase NET patient support
2023 Goals
  • Fund 3 NET Nurse Positions
  • Develop new patient resources to meet unmet needs
  • Develop and coordinate telehealth nurse delivery and referral pathways in each state
National Action Plan 1 & 2
2024 Goals
  • Secure ongoing funding for 5 NET Nurses
  • Undertake patient resource audit and develop as needed
  • Additional nurses—providing telehealth and referral pathways
2025 Goals
  • Secure additional funding to provide ongoing regional & rural access to services and support
  • Obtain additional nurses providing telehealth and referral pathways
Education
Increase education
2023 Goals
  • Host 3 Patient forums per year (i.e. 1 in each state every 2nd year)
  • Implement HCP education—in services/modules
  • Expand distribution of OCP amongst HCPs
  • Implement Symptom Awareness Campaign
National Action Plan 3
2024 Goals
  • Develop medical & nursing materials and curriculums
  • Expand presence at relevant medical, industry and consumer conferences as invited speakers
  • Develop Dietitian Education Modules for implementation nationally and internationally
2025 Goals
  • Develop and expand educational resources for multidisciplinary HCPs
  • Develop and expand educational resources for multidisciplinary HCPs
Awareness
Increase awareness and visibility
2023 Goals
  • Increase awareness amongst HCP and general public (refer Digital & PR plans)
  • Develop and host a dedicated annual NET event
  • Promote availability of OCP to wider health & industry networks
National Action Plan 4 & 5
2024 Goals
  • Undertake ongoing awareness campaign
  • Host dedicated annual event
  • Increased media exposure by expanding journalist outreach
2025 Goals
  • Increased attendance over previous year s dedicated annual NETs event
  • Development of media kit for third parties to use in their outreach
  • 15% increase on previous year’s media presence
Research
Foster advancements and innovation
2023 Goals
  • Neuroendocrine Cancer Registry—PLANET Registry operational in Centres of Excellence
  • Implementation of AUSNET study—nurse led shared care model
National Action Plan 6 & 8
2024 Goals
  • Secure funding for Genetic/Genomic Study
  • Develop Nutrition Screening Tool
2025 Goals
  • NECA is acknowledged as partner of choice for inclusion in international trials and projects—key stakeholders—ENETs, CommNETs
Advocacy
Equity of access to treatments
2023 Goals
  • MSAC submissions
  • Senate Inquiry
  • Lobby MPs
  • Continued implementation of the National Action Plan
  • Work with Federal Government to ensure Neuroendocrine cancer is recognised with the Australian Cancer Plan
National Action Plan 2 & 8
2024 Goals
  • Clinical Trial funding (dedicated stream for Rare & Less Common Cancers)
  • Continued implementation of the National Action Plan
  • Develop advocacy materials for third parties to implement their own representation to governments
2025 Goals
  • Continued implementation of the National Action Plan
  • Recognition—secure ongoing funding from Government by lobbying for support services and resources
  • Garner third party support to lobby on NECAs behalf for significant allocation of funding of NETs through major MRFF grant or Federal Budget item
Financial Sustainability
Increase funding
2023 Goals
  • Maintain and enhance 2022 funding from existing sources
  • 20% increase on 2022 budget from new channels
  • Achieve State Government funding for nursing program
  • Federal Government—grant applications
  • Non government Grant applications
  • Clinical Trial partnerships
  • Corporate Partners
  • Prebudget Submission
2024 Goals
  • Government funding—State & Federal for awareness & nursing program
  • Clinical Trials
  • Corporate Partners
  • Prebudget Submission
  • Non government Grant applications
2025 Goals
  • Continued implementation of the National Action Plan
  • Clinical Trials
  • Corporate Partners
  • Prebudget Submission
  • Non government Grant applications

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Senate Recommendations: 18 & 19

In 2024 a Senate Recommendation was released in response to the inquiry into equitable access to diagnosis and treatment for individuals with rare and less common cancers, including neuroendocrine cancer’. This inquiry sought to address the significant barriers faced by patients in obtaining timely and effective cancer care.

Recommendations 18 & 19 relate specifically to this strategic priority.

Senate Recommendations: 3, 4, 5 & 12

In 2024 a Senate Recommendation was released in response to the inquiry into equitable access to diagnosis and treatment for individuals with rare and less common cancers, including neuroendocrine cancer’. This inquiry sought to address the significant barriers faced by patients in obtaining timely and effective cancer care.

Recommendations 3, 4, 5 & 12 relate specifically to this strategic priority.

Senate Recommendations: 7, 8, 16, 17, 34, 35, 36 & 38

In 2024 a Senate Recommendation was released in response to the inquiry into equitable access to diagnosis and treatment for individuals with rare and less common cancers, including neuroendocrine cancer’. This inquiry sought to address the significant barriers faced by patients in obtaining timely and effective cancer care.

Recommendations 7, 8, 16, 17, 34, 35, 36 & 38 relate specifically to this strategic priority.

Senate Recommendations: 18 & 19

In 2024 a Senate Recommendation was released in response to the inquiry into equitable access to diagnosis and treatment for individuals with rare and less common cancers, including neuroendocrine cancer’. This inquiry sought to address the significant barriers faced by patients in obtaining timely and effective cancer care.

Recommendations 18 & 19 relate specifically to this strategic priority.

Senate Recommendations: 1, 18, 19, 22, 29 & 30

In 2024 a Senate Recommendation was released in response to the inquiry into equitable access to diagnosis and treatment for individuals with rare and less common cancers, including neuroendocrine cancer’. This inquiry sought to address the significant barriers faced by patients in obtaining timely and effective cancer care.

Recommendations 1, 18, 19, 22, 29 & 30 relate specifically to this strategic priority.

Senate Recommendations: 19, 20, 21 & 27

In 2024 a Senate Recommendation was released in response to the inquiry into equitable access to diagnosis and treatment for individuals with rare and less common cancers, including neuroendocrine cancer’. This inquiry sought to address the significant barriers faced by patients in obtaining timely and effective cancer care.

Recommendations 19, 20, 21 & 27 relate specifically to this strategic priority.

National Action Plan: Key Action 2 & 8

NECA’s National Action Plan, plans to establish and consolidate across 8 key areas over the next five-year period. Key action points 2 & 8 relate specifically to this section.

2

Information & resources

Continual development of multi-media resources and information.
8

Targeted research

Targeted call for research (NHMRC/MRFF) for Neuroendocrine Tumours.

National Action Plan: Key Action 6 & 8

NECA’s National Action Plan, plans to establish and consolidate across 8 key areas over the next five-year period. Key action points 6 & 8 relate specifically to this section.

6

Data Registry (PLANET)

Data Registry (PLANET).
8

Targeted research

Targeted call for research (NHMRC/MRFF) for Neuroendocrine Tumours.

National Action Plan: Key Action 4 & 5

NECA’s National Action Plan, plans to establish and consolidate across 8 key areas over the next five-year period. Key action points 4 & 5 relate specifically to this section.

4

National awareness campaign

A national NET awareness campaign.
5

Optimal Care Pathway

Development and implementation of a National NET Optimal Care Pathway.

National Action Plan: Key Action 3

NECA’s National Action Plan, plans to establish and consolidate across 8 key areas over the next five-year period. Key action point 3 relates specifically to this section.

3

Education of healthcare professionals (HCPs)

Enhanced education for healthcare professionals.

National Action Plan: Key Action 1 & 2

NECA’s National Action Plan, plans to establish and consolidate across 8 key areas over the next five-year period. Key action points 1 & 2 relate specifically to this section.

1

NET specialist telehealth nurses

Support for specialist NET telehealth nurses and oncology social workers.
2

Information & resources

Continual development of multi-media resources and information.