Patient Stories Archive - Page 6 of 10 - NeuroEndocrine Cancer Australia

Rob, TAS

Experiencing symptoms of fatigue, tiredness, and anxiety, I couldn’t ignore the significance of my condition, especially considering my family history.

John, VIC

Having two Primary NETs two years apart is incredibly rare. It highlights that there is still much to learn about this kind of cancer.

I still remember asking the young girl doing the ultrasound “So what is that?” expecting her to say something like “Oh that’s your …”. But her more serious and cautious response was along the lines of “You will need to speak to your doctor…”

Greg, QLD

Greg’s symptoms included tiredness, fatigue and diarrhoea.

Cathy, QLD

Cathy’s symptoms were fatigue, diarrhoea and anxiety.

Cindy, NSW

My journey started when I was in my early teens. At 14 my sister and myself were sent for genetic testing to see if we carried the MEN1 gene as my mother was told there was a 50/50 chance that this could have been passed onto us. Both my sister and I both inherited MEN1.