NeuroEndocrine Cancer Australia - formerly the Unicorn Foundation

On average 5,437 people (2,846 males and 2,591 females) are diagnosed with neuroendocrine tumours in Australia each year and this figure is on the rise.

%

60%

60% of NETs are advanced by the time patients are correctly diagnosed. Many patients have secondary growths at the time of diagnosis (stage 4 cancer).

NETs Info

Gain access to specialised neuroendocrine information.

I am a patient

Find patient specific resources and support.

I am a HCP

Gain access to all HCP resources, articles and registries.

Get involved

Want to help improve the lives neuroendocrine patients?

Make a difference to the lives of NET patients.

How much would you like to donate?

Donations to NeuroEndocrine Cancer Australia help to raise funds for research into neuroendocrine cancer and help to provide specialised care to patients living with this disease. Diagnoses are on the rise. With your help we can work towards finding a cure.

$10

$25

$50

$100

$250

$500

$1,000

Print and send a NET patient booklet to patients and hospitals around the country.

Print and send a suite of NET patient booklets to newly diagnosed patients.

Provides telephone support through our specialist NET Nurse helpline.

Will help provide online resources for patients, carers and healthcare professionals.

Helps facilitate Living with NETs online patient workshops.

Directly contributes to a NET Patient forum, educating connecting NET patients in each state of Australia.

Allows us to help fund life changing research in to NETs via the Planet Registry App.

Introduction to the 5 Pillars

NeuroEndocrine Cancer Australia is the only not for profit medical charity providing support to Australians living with neuroendocrine cancers.

We are governed by five pillars: patient support, education, research, awareness and advocacy. These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community and access to the care and treatment that they deserve.

NeuroEndocrine Cancer Australia – champions for early diagnosis and a cure

Support

Education

Research

Awareness

Advocacy

Patient stories

Dan, VIC

I know that I don’t have all the knowledge or tools in my kit to win the mental game by myself, so my family and I reach out to the amazing, experienced resources that are available at NeuroEndocrine Cancer Australia. It really helps to have someone that can validate how I am feeling or explain the processes and cycles that I will go through.

Karen, SA

My days and months have been spending time and money on and in medical appointments, tests and scans, rooms, clinics and medications and listening to profoundly specialised medical jargon, which is not always explained fully and sometimes assumed to be common knowledge,

Chris, TAS

I was told my cancer was called Clear Cell Carcinoma. The doctors said there was no cure and that I only had 12 months to live. They told me to get my affairs in order. That was twelve years ago and I am still here.

Roxanne, ACT

The hardest thing has been actually finding out what was wrong with me. No-one could tell me for months and the toll it took on me and my family was devastating. The lack of knowledge of NETs amongst the medical fraternity amazed me. Still a long way to go.

Judy, SA

The results showed 15 tumours in my liver. Within days I had a biopsy, which confirmed it was a neuroendocrine tumour. I had never heard of this type of cancer prior to being diagnosed.

Lauren, Tas

My story shows the inequity patients living with neuroendocrine carcinoma. Cancer is cancer. It should not matter what type you have. Every patient deserves the same access to life-saving treatment.

News

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