News
- Expressions of interest open for ANZSNM nurse and allied health workshop in Canberra (March 31, 2026)
- Will Norman Nurse Webinar #2 (March 24, 2026)
- Over 1,000 Nurses Now Enrolled in NECA’s Free Education Modules (March 24, 2026)
- NECA partners with Oncidium ahead of World Radiotheranostics Day 2026 (March 24, 2026)
- ACCN Hosts Inaugural Regional, Rural and Remote Cancer Care Workshop in Dubbo (March 20, 2026)
- March4NETs 2026: Events uniting communities around Australia (March 19, 2026)
- NECA attends launch of Nuclear Medicines Australia National Action Plan at Parliament House (March 13, 2026)
- NECA and patient advocates take MTC treatment access to Parliament (March 5, 2026)
- Sandi's Full Moon Swim (March 3, 2026)
- March4NETs in the Media - 2026 (March 3, 2026)
- NECA attends Australian Patient Advocacy Alliance Summit at Parliament House (March 3, 2026)
- February 2026 (March 2, 2026)
- The David Trophy 2026 (February 28, 2026)
- NECA CEO Meredith Cummins is Now INCA President (February 16, 2026)
- Raising awareness of neuroendocrine cancer at Peninsula Bays Hospital Wellness Day (February 8, 2026)
- Raising Awareness for NETs on World Cancer Day in WA (February 4, 2026)
- Australia delivers excellent cancer care, but not equally (February 3, 2026)
- NECA Contributes to Multidisciplinary Systemic Review (January 28, 2026)
- AUS-NET Update, January 2026 (January 20, 2026)
- January 2026 (January 3, 2026)
- CommNETs 2025 (December 15, 2025)
- NECA attends Professionals Uplifting Patient Partnership (PUPP)’s final event of the year (December 5, 2025)
- Navigating Extrapulmonary Neuroendocrine Carcinoma: COR2ED Resource Featuring Insights from NECA CEO Meredith Cummins (December 5, 2025)
- December 2025 (December 3, 2025)
- Celebrated Chef and Slow Food Pioneer Skye Gyngell Passed Away from Neuroendocrine Cancer (November 27, 2025)
- Attribute Preferences for SSAs in NETs Among Patients, Clinicians and Nurses in Australia (November 26, 2025)
- NECA Christmas and New Year Closure Details (November 18, 2025)
- Neuroendocrine Cancer Day 2025 (November 11, 2025)
- NECA attends ACNNP Governance Group Day (November 11, 2025)
- Ipsen's Lunch and Learn with NECA for Neuroendocrine Cancer Day (November 11, 2025)
- Nuclear Medicine Round Table (November 7, 2025)
- November 2025 (November 3, 2025)
- Equitable Access to Cancer Care: Reflections from Parliament House (October 30, 2025)
- Sydney NET Patient Forum Brings Together Patients and Clinicians (October 28, 2025)
- Patient and Consumer Roundtable on Comparator Selection in HTA (October 27, 2025)
- Racing for a Cure 2025 (October 27, 2025)
- NECA Highlights Gaps in Government’s Senate Inquiry Response (October 15, 2025)
- October 2025 (October 3, 2025)
- Rare Cancers Roundtable (September 25, 2025)
- Shining a Light for World Neuroendocrine Cancer Day – Help Us Light Up Australia (September 25, 2025)
- Celebrating Shane Kent’s Arch2Arc Journey and Fundraising (September 20, 2025)
- Will Norman Nurse Webinar on Neuroendocrine Cancer (September 18, 2025)
- 13th INCA Global NET Patient Advocate Summit (September 16, 2025)
- PCPA Cancer Summit (September 12, 2025)
- SCAN 2025 is now open - we need your voice (September 8, 2025)
- NeuroEndocrine Cancer Australia at PharmAus2025 (September 3, 2025)
- September 2025 (September 3, 2025)
- Medicines Australia Horizon Scanning - Advancing Patient Access and Genomics (September 3, 2025)
- CanForum 2025: Now it’s personal: Access and equity for all (September 2, 2025)
- August 2025 (August 25, 2025)
- Sharon Rickard Completes Run Larapinta 2025! (August 18, 2025)
- Shane Kent Conquers the World’s Toughest Triathlon for Neuroendocrine Cancer Awareness (August 17, 2025)
- Turn Your Cans & Bottles into Support for NET Patients (August 12, 2025)
- July 2025 (July 25, 2025)
- National Patient Organisation Network (NPON) (July 24, 2025)
- Professionals Uplifting Patient Partnerships (PUPP) Event (July 22, 2025)
- NETs in the Spotlight: Sydney Billboard Campaign Wraps Up (July 21, 2025)
- Royal Brisbane and Women’s Hospital Preceptorship (July 18, 2025)
- The Canberra Times - Living with NETs (July 16, 2025)
- ACCN Innovations Showcase 2025 (July 8, 2025)
- Ryan Harding - The Northern Daily Leader - 5th July 2025 (July 5, 2025)
- Radio National Interview: Changing Australia June 2025 (June 30, 2025)
- June 2025 (June 25, 2025)
- Adelaide NET Patient Forum 2025 (June 24, 2025)
- CNSA & ICCN 2025 Congress: Global Voices, Local Actions (June 24, 2025)
- Famous people who have passed from NETs: Dave Thomas (June 18, 2025)
- Announcing our First Patient Ambassador - Cassie Miller (June 17, 2025)
- Bringing Together Experts to Improve NET Patient Care: NECA at the 5th NET Preceptorship (June 16, 2025)
- 2025 Impact Report (June 16, 2025)
- Be the Voice for NET Patients in WA – Join Our CAG Team (June 10, 2025)
- BioPharmaDispatch 2025: Putting NETs on the National Agenda (May 27, 2025)
- WA Cancer Forum (May 27, 2025)
- ANZSNM 55th annual conference in Melbourne – Australia (May 27, 2025)
- NECA Strategy Day 2025 (May 27, 2025)
- May 2025 (May 25, 2025)
- Von Hippel-Lindau (VHL) Parliamentary Event (May 20, 2025)
- International Nurses Day 2025 (May 12, 2025)
- VHL Awareness Month 2025 (May 6, 2025)
- NET Patient Chris, from Ballarat, Raises Awareness of Neuroendocrine Cancer (May 5, 2025)
- Help Us Grow: Connect NECA with Corporate Partners to Make a Lasting Impact (April 29, 2025)
- April 2025 (April 25, 2025)
- Neuroendocrine Cancer Awareness Daily Mail 5 April 2025 (April 4, 2025)
- Neuroendocrine Cancer in Budget 2025–26 (March 31, 2025)
- Australian Cancer Nurse Navigation Program (ACNNP) Roundtable (March 31, 2025)
- Parliament House representation for Federal Budget briefings (March 27, 2025)
- March 2025 (March 25, 2025)
- VHL in the news March 2025 (March 25, 2025)
- Bunbury Support Group raises awareness of March4NETs (March 17, 2025)
- ‘Cancer & Genomics’ Webinar + New Podcast (March 16, 2025)
- Advancing VHL Care: Clinicians Unite for a Multidisciplinary Approach (March 15, 2025)
- Cancer Survivorship Conference (March 13, 2025)
- Lynda Dunstone Featured in National Media on Nuclear Medicine Access (March 13, 2025)
- NECA at ENETS 2025: Advancing NET Care on the Global Stage (March 9, 2025)
- March4NETs Kicks Off with Events Across Australia (March 5, 2025)
- The David Trophy 2025 (February 26, 2025)
- February 2025 (February 25, 2025)
- AGIG Steps Up Again to Support March4NETs in 2025 (February 25, 2025)
- Join a March4NETs Community Fundraiser Near You! (February 11, 2025)
- Media Coverage Highlights VHL Awareness and Equity in Cancer Care (February 11, 2025)
- Channel 7 reports on life changing access to Belzutifan for VHL Patients (January 28, 2025)
- January 2025 (January 25, 2025)
- Funding announced for a dedicated Neuroendocrine Cancer McGrath Nurse in WA (January 9, 2025)
- December 2024 (December 25, 2024)
- Vale, Paul Stephenson (December 17, 2024)
- CommNETs 2024 Conference (December 16, 2024)
- NECA Christmas and New Year Closure Details (December 10, 2024)
- Belzutifan listed on PBS 1st December 2024 (December 2, 2024)
- Melbourne NET Forum 2024 (November 29, 2024)
- Bridging funding to enable faster access to medicines in Australia (November 28, 2024)
- November 2024 (November 25, 2024)
- COSA ASM 2024 (November 22, 2024)
- Steve and Jakes Everesting Challenge - thank you! (November 19, 2024)
- Neuroendocrine Cancer Day 2024: Help Raise Awareness All Month Long (November 12, 2024)
- Sydney Unicorn Get Together 2024 (November 10, 2024)
- Racing for a Cure 2024 (October 29, 2024)
- October 2024 (October 25, 2024)
- Ballarat Wellbeing Day for Women with Cancer (October 24, 2024)
- Meet with your local MP and help improve NET patient care. (October 15, 2024)
- AUS-NET October 2024 update (October 15, 2024)
- Biomarkers to Inform Prognosis and Treatment for Unresectable or Metastatic GEP-NENs (October 9, 2024)
- September 2024 (September 25, 2024)
- 12th INCA Global NET Cancer Advocate Summit (September 17, 2024)
- Medicines Australia PharmAus2024 event, Parliament House, Canberra (September 12, 2024)
- AANMS August 2024 (August 26, 2024)
- August 2024 (August 25, 2024)
- NeuroEndocrine Cancer Australia Celebrates Groundbreaking PBS Recommendation of Life-Changing Treatment for Von Hippel-Lindau (VHL) Patients. (August 23, 2024)
- CanForum 2024 - A Rare Cancer Moonshot (August 21, 2024)
- Team Janine completes City2Surf and raises over $9,000 for NECA (August 12, 2024)
- Telehealth Support Team Grows (August 6, 2024)
- July 2024 (July 25, 2024)
- VHL Awareness Event at Parliament House Highlights Urgent Need for Belzutifan Approval (July 8, 2024)
- NeuroEndocrine Cancer Australia (NECA) receives inaugural Government Grant for Specialist Support Services. (July 1, 2024)
- June 2024 (June 25, 2024)
- Cancer Nurses Society of Australia (CNSA) 2024 Congress (June 24, 2024)
- 2024 Brisbane NET Patient Forum Recap (June 18, 2024)
- High Tea Fundraiser (June 18, 2024)
- NECA Impact Report 2024 (June 6, 2024)
- Senate Inquiry Report Released with 41 Recommendations (May 27, 2024)
- May 2024 (May 25, 2024)
- International Nurses Day 2024 (May 7, 2024)
- ANZSNM 54th annual conference in Te Pae Christchurch NZ (April 30, 2024)
- April 2024 (April 25, 2024)
- Famous People Who Have Passed from NETs: Irrfan Khan (April 19, 2024)
- NECA supports VHL patients Australia wide as they lobby for Belzutifan to be included on PBS (April 12, 2024)
- Share your VHL story with PBAC to list Belzutifan on the PBS (April 10, 2024)
- APPIS (Alliance & Partnership for Patient Innovation and Solutions) Summit 2024 (March 28, 2024)
- Card Sisters Host Successful Fundraiser for March4NETS (March 27, 2024)
- March 2024 (March 25, 2024)
- Sign this life-changing petition to place Belzutifan on the PBS in Australia (March 19, 2024)
- ENETS Conference 2024 (March 19, 2024)
- Famous People Who Have Passed from NETs: Wilko Johnson (March 15, 2024)
- Famous People Who Have Passed from NETs: Aretha Franklin (March 15, 2024)
- Famous People Who Have Passed from NETs: Steve Jobs (March 15, 2024)
- The David Trophy 2024 (February 25, 2024)
- February 2024 (February 25, 2024)
- NECA Team's Advocacy Efforts Extend to 13 Industry Boards and working groups for Neuroendocrine Cancer Patients (February 23, 2024)
- Tamworth local Ryan Harding advocates for VHL patients to have access to Belzutifan (February 23, 2024)
- NET Patient Rob Hammond speaks at the Senate Inquiry hearing in Tasmania (February 20, 2024)
- NECA presents alongside Peter MacCallum Cancer Centre at the Senate Inquiry (February 1, 2024)
- January 2024 (January 25, 2024)
- Celebrating one year of the Optimal Care Pathway for people with NETs (January 24, 2024)
- NeuroEndocrine Cancer Australia are delighted to announce a new donor partnership. (January 23, 2024)
- Become a Cancer Connect Volunteer at NECA and make a meaningful Impact! (January 22, 2024)
- AGIG Partners with NECA to sponsor March4NETs (January 21, 2024)
- Sisters Full Moon Dip Fundraiser (November 28, 2023)
- November 2023 (November 25, 2023)
- Watercolours in Balmain fundraiser (November 21, 2023)
- CommNETS Conference - New Zealand (November 21, 2023)
- AGITG Annual Scientific Meeting - New Zealand (November 21, 2023)
- NECA Media Coverage for NET Cancer Day (November 14, 2023)
- Promising Commitment by Shadow Minister for Health Anita Dow and Member for Bass, Janie Finlay (November 14, 2023)
- Michael Usher interviews NET Patient for NET Cancer Day (November 11, 2023)
- Australian Cancer Plan (November 3, 2023)
- Launceston NET Patient Forum (October 27, 2023)
- Flinders Island Cup - Race for a Cure 2023 (October 27, 2023)
- October 2023 (October 25, 2023)
- 25,550+ Australians and counting: The growing need for neuroendocrine cancer care (October 18, 2023)
- Help us on NET Cancer Day (October 17, 2023)
- NET Cancer Day 2023 (October 17, 2023)
- Meeting with Dr Joe McGirr Independent MP for Wagga Wagga (October 4, 2023)
- Meeting with Dr Gordon Reid Federal Labor Member for Robertson (October 4, 2023)
- Oncology for the Inquisitive Mind (October 4, 2023)
- Online survey for NET patients (September 26, 2023)
- Medicines Australia PharmAus event in Canberra (September 26, 2023)
- INCA Annual Summit 2023 (September 26, 2023)
- September 2023 (September 25, 2023)
- Special – Help us on NET Cancer Day (September 25, 2023)
- Have your say on #EndGenderBias in Australia’s healthcare system (September 19, 2023)
- August 2023 (August 25, 2023)
- NECA/Ipsen Workshop: Improving NET Awareness & Time to Diagnosis (August 24, 2023)
- Perth NET Forum Recap (August 22, 2023)
- South Australia Cancer Nursing Society of Australia Groups Education Dinner (August 18, 2023)
- Theranostics Education Evening in Albury Wodonga (August 18, 2023)
- National Symptom Awareness Campaign (July 30, 2023)
- July 2023 (July 25, 2023)
- Demystifying Neuroendocrine Cancer for patients and nurses (July 25, 2023)
- Closing the NET on Rare Cancers Article published by Melbourne Uni (July 11, 2023)
- Equitable access for all NET patients (July 11, 2023)
- Senate moves motion to establish rare cancer inquiry (June 26, 2023)
- June 2023 (June 25, 2023)
- Global Gaps in Access to Diagnostics and Treatment for Neuroendocrine Cancer Patients published in Journal of Neuroendocrinology (June 22, 2023)
- CNSA Annual National Congress 2023 (June 22, 2023)
- Adelaide NET Patient Forum (June 22, 2023)
- Call Out for a Consumer Advisory Representative from Western Australia / South Australia (June 21, 2023)
- Online survey for female cancer survivors (June 14, 2023)
- Donor Report 2022/23 (June 13, 2023)
- Order of Australia Recipients (June 13, 2023)
- Australia & New Zealand Society of Nuclear Medicine (ANZSNM) Conference (May 30, 2023)
- Michael Usher joins NECA as an Ambassador (May 30, 2023)
- May 2023 (May 25, 2023)
- With Thanks (May 4, 2023)
- April 2023 (April 25, 2023)
- ENETS Conference 2023 (March 27, 2023)
- March 2023 (March 25, 2023)
- February 2023 (February 25, 2023)
- Michael Doyle Live Wake Fundraiser (February 4, 2023)
- Optimal Care Pathway now available for NETs (January 30, 2023)
- January 2023 (January 25, 2023)
- World Cancer Day 2023 (January 9, 2023)
- December 2022 (December 25, 2022)
- Support Groups Christmas Gatherings (December 20, 2022)
- NeuroEndocrine Cancer Australia & Norman Family Trust Partnership (December 14, 2022)
- NeuroEndocrine Cancer Australia partners with Gathered Here to provide the NET community with free online Wills (December 14, 2022)
- CommNETS Annual Research Workshop (December 8, 2022)
- Sydney Unicorn Get Together (November 29, 2022)
- Chronic Disease Management Summit (November 29, 2022)
- November 2022 (November 25, 2022)
- Australasian Gastro-Intestinal Trials Group (AGITG) Annual Scientific Meeting in Melbourne (November 17, 2022)
- 2022 PRIME Awards win (November 15, 2022)
- NET Cancer Day 2022 (November 10, 2022)
- Clinical Oncology Society of Australia (COSA) Conference, 2-4 Nov 2022 (November 2, 2022)
- COSA Neuroendocrine Neoplasms (NENs) guidelines open for public consultation (October 31, 2022)
- Brisbane NET Patient Forum November 2022 (October 31, 2022)
- 2022 NET Cancer Day (October 26, 2022)
- October 2022 (October 25, 2022)
- Flinders Island Cup - Race for a Cure 2022 (October 20, 2022)
- Living with NETS Program (September 27, 2022)
- September 2022 (September 25, 2022)
- Brisbane NET Patient Forum (September 21, 2022)
- Can Forum 2022 (September 12, 2022)
- NECA Finalist as NGO of the Year in Prime Awards (August 30, 2022)
- Australasian Association of Nuclear Medicine (AANMS) inaugural education workshop (August 28, 2022)
- August 2022 (August 25, 2022)
- Peter MacCallum Cancer Centre NET Centre of Excellence expands (July 31, 2022)
- July 2022 (July 25, 2022)
- Improving referral pathways from regional areas to NET centres of excellence (July 25, 2022)
- The Australian Cancer Plan (July 21, 2022)
- Impact of Nutritional Status on Gastroenteropancreatic Neuroendocrine Tumors (GEP-NET) Aggressiveness (July 21, 2022)
- Peter MacCallum Cancer Centre - Recruiting NET health professionals for International Delphi survey (July 20, 2022)
- Molecular imaging phenotyping for selecting and monitoring radioligand therapy of neuroendocrine neoplasms (July 20, 2022)
- Role of Diet in the Management of Carcinoid Syndrome (July 20, 2022)
- Possible treatment for persistent cough - acupuncture (July 20, 2022)
- ENETS 2022 Guidance Paper (July 20, 2022)
- 6th Theranostics World Congress (June 27, 2022)
- June 2022 (June 25, 2022)
- 5HIAA Urine Collection Instructions for Patients (June 23, 2022)
- Donor Report 2021/2022 (June 21, 2022)
- Cancer Nurses Society of Australia 24th Annual Congress (June 18, 2022)
- The Future of Precision Oncology in Nuclear Medicine - Report (June 16, 2022)
- COVID-19 Information and Resources (June 1, 2022)
- May 2022 (May 25, 2022)
- NeuroEndocrine Cancer Australia & Macquarie University study on important online resources for NET patients. (May 1, 2022)
- University of South Australia -Volunteers needed nationally. (April 27, 2022)
- Expression-of-Interest for consumer participation on Grant Review Committees for the 2022 Priority-driven Collaborative Cancer Research Scheme (April 26, 2022)
- April 2022 (April 25, 2022)
- European Neuroendocrine Tumor Society (ENETS) 2022 Guidance Paper for Carcinoid Syndrome and Carcinoid Heart Disease (April 17, 2022)
- When The Phone Rings (March 28, 2022)
- March 2022 (March 25, 2022)
- Fedez Pancreatic Neuroendocrine Tumour diagnosis (March 24, 2022)
- ENETS 2022 (March 11, 2022)
- Wellness Day 2022 (March 1, 2022)
- February 2022 (February 25, 2022)
- January 2022 (January 25, 2022)
- NECA proud to be an integral part of the AUSNET trial (January 24, 2022)
- Consultation on Ten Year Nurse Practitioner Plan (January 20, 2022)
- Cancer Education Program for those affected by Neuroendocrine Cancers (NETs) (January 15, 2022)
- December 2021 (December 25, 2021)
- November 2021 (November 25, 2021)
- NET Connect Meeting Series (November 17, 2021)
- October 2021 (October 25, 2021)
- ENETS-INCA NET Cancer Day Educational Webinar (October 21, 2021)
- Provectus Biopharmaceuticals Announces Presentation of Full Study Data from Metastatic Neuroendocrine Cancer Phase 1 Trial of PV-10® at European Society for Medical Oncology (ESMO) Congress 2021 (September 27, 2021)
- September 2021 (September 25, 2021)
- Action plan support - short videos wanted! (September 23, 2021)
- Peter MacCallum 25th Anniversary of PRRT with Professor Rod Hicks (September 11, 2021)
- Introducing Australian Rare Cancer Portal (September 1, 2021)
- August 2021 (August 25, 2021)
- New Normal, Same Cancer Campaign (August 10, 2021)
- Real-world management and patient perspectives on QOL with neuroendocrine tumours: An ANZ perspective (July 27, 2021)
- July 2021 (July 25, 2021)
- June 2021 (June 25, 2021)
- Medicines Australia, Room with a Patient View (June 23, 2021)
- NETs Q&A 2021 (June 9, 2021)
- Clinical Cancer Research: Immunotherapy of ipilimumab and nivolumab (June 7, 2021)
- Medical imaging and nuclear Medicine: A Lancet Oncology Commission (June 2, 2021)
- Patient perspectives, from diagnosis through treatments and beyond. (May 31, 2021)
- May 2021 (May 25, 2021)
- PC4 Conference (May 24, 2021)
- ANZSNM Annual Scientific Meeting 21-23 May 2021 (May 21, 2021)
- BioPharmaDispatch 2021 (May 17, 2021)
- FREE PVI PATIENT WEBINARS (April 27, 2021)
- April 2021 (April 25, 2021)
- Australian Government invests in Optimal Care Pathway for Neuroendocrine Tumours (April 22, 2021)
- Back to the Drive-In Fundraiser (April 16, 2021)
- BNI A Team Golf Day in Adelaide (March 25, 2021)
- March 2021 (March 25, 2021)
- Fowles Wine Regional Feast 2021 (March 20, 2021)
- Nutritional and Vitamin Status in Patients with NETs (March 14, 2021)
- ENETS Presentations Feb 2021 (February 27, 2021)
- February 2021 (February 25, 2021)
- CommNETs Virtual Workshop Report Feb 2021 (February 17, 2021)
- January 2021 (January 25, 2021)
- December 2020 (December 25, 2020)
- November 2020 (November 25, 2020)
- October 2020 (October 25, 2020)
- Watch Presentations from MENETS World NET Live day from September 2020 (October 12, 2020)
- COMMNETs/NANETS Guidelines for the diagnosis & management of patients with Lung NeuroEndocrine Tumours (October 8, 2020)
- INCA Research Advocate Boot Camp 2020 (September 29, 2020)
- September 2020 (September 25, 2020)
- Calling WA residents to sign a petition to improve NET patient outcomes (August 31, 2020)
- The Economic Impact on Australian Patients with Neuroendocrine Tumours (August 27, 2020)
- Changes at NECA HQ (August 27, 2020)
- August 2020 (August 25, 2020)
- Changing the Paradigm of Merkel Cell Carcinoma in Australia (August 25, 2020)
- House of Reps Inquiry Into the Approval Processes For New Drugs and Novel Medical Technologies (August 24, 2020)
- Call Out for a Consumer Advisory Representative from Tasmania / South Australia (August 5, 2020)
- INCA launches the first online Research Advocate Bootcamp (July 31, 2020)
- Demystifying Neuroendocrine Tumours - CNSA Webinar (July 31, 2020)
- Getting Results Survey - asking for your experiences (July 24, 2020)
- INFO4NETs Online Resource now Live. (July 7, 2020)
- NECA help fund research around nutrition and NETs (June 30, 2020)
- Call Out for a Consumer Advisory Representative from WA (June 30, 2020)
- June 2020 (June 25, 2020)
- Major Donor Report (June 17, 2020)
- 32 neuroendocrine tumour presentations at ASCO annual scientific conference (June 16, 2020)
- Lets Walk for Jen Fundraiser (May 29, 2020)
- Head Shave for MEN2a Fundraiser (May 29, 2020)
- May 2020 (May 25, 2020)
- Raising Awareness for Neuroendocrine Cancer and Let's Walk for NETs - Ticker TV Newsroom (May 1, 2020)
- The David Trophy raises funds and awareness for a second year in a row (April 30, 2020)
- Jo raises funds for NeuroEndocrine Cancer Australia at her 50th birthday celebration (April 29, 2020)
- April 2020 (April 25, 2020)
- Simone Leyden ends tenure as INCA president and presents at INCA Summit (April 15, 2020)
- Geelong Exotic Car Club raise funds for NeuroEndocrine Cancer Australia (April 4, 2020)
- Lets WALK for NETs! (March 30, 2020)
- Hobart Information Session: Upper Gastrointestinal Cancer (March 30, 2020)
- March 2020 (March 25, 2020)
- NeuroEndocrine Cancer Australia present 6 scientific abstracts at ENETs 2020 (March 22, 2020)
- Fowles Wine "Are you Game?" Lunch Feast 2020 (March 16, 2020)
- Introducing NeuroEndocrine Cancer Australia (March 3, 2020)
- Simone Leyden ends tenure as INCA president (March 3, 2020)
- Shauna and John Parsons raise $11,000 for NeuroEndocrine Cancer Foundation (March 3, 2020)
- Wagga Wagga Patient NET Forum (March 3, 2020)
- Let's ask for our government to "Be Fair" with funding (February 25, 2020)
- January 2020 (January 25, 2020)
- December 2019 (December 25, 2019)
- 46th Annual Clinical Oncology Society of Australia (COSA) Meeting (November 28, 2019)
- Adelaide NET Patient Education Forum (November 28, 2019)
- Annual Craft and Gift Show, another success for our QLD Unicorns (November 28, 2019)
- World NET Cancer Day 2019 (November 28, 2019)
- Despite bushfires, Bronwyn raises awareness and funds on NET Cancer Day (November 27, 2019)
- Adelaide Support Group hosts sold out event on NET Cancer Day (November 27, 2019)
- Shauna and John Parsons approach the end of their 1000km Trek for NET funding (November 27, 2019)
- Unicorn Foundation Car Show organised by Mark Camilleri and friends (November 27, 2019)
- Thank you WA Patient Margaret Powell for her Sunday Market fundraiser (November 26, 2019)
- Clinical Trials and Neuroendocrine Tumours (November 26, 2019)
- November 2019 (November 25, 2019)
- 1st World NET Forum (November 25, 2019)
- International Journal of Cancer Publication (November 25, 2019)
- First results of CONTROL NETs trial to be presented at ASCO GI 2020 (November 25, 2019)
- Smooth FM covers World NET Cancer Day, 2019 (November 10, 2019)
- 2019 World NET Cancer Day venues (November 5, 2019)
- 10 Year Gala Dinner Wrap Up (October 25, 2019)
- Peninsula Essence: As rare as a Unicorn (October 1, 2019)
- John Leyden sails to raise funds for WA Net Nurse (September 29, 2019)
- September 2019 (September 25, 2019)
- Consensus-Derived Quality Performance Indicators for NET Care (September 24, 2019)
- Hobart NET Patient Forum (September 24, 2019)
- Trek for Michael (September 24, 2019)
- Brisbane NET Patient Forum (September 24, 2019)
- Grant success for Dr David Chan (September 24, 2019)
- Are you eligible for a clinical trial? (September 24, 2019)
- INCA launches global survey for NET patients and HCPs (September 24, 2019)
- AGITG Annual Scientific Meeting (August 29, 2019)
- Medical Oncology Group of Australia Annual Meeting (August 29, 2019)
- Canberra NET Patient Forum (August 29, 2019)
- Video to help pronounce "Neuroendocrine" (August 26, 2019)
- Editorial about financial toxicity of NET cancer (August 26, 2019)
- A run in the land of the midnight sun (August 26, 2019)
- August 2019 (August 25, 2019)
- 7th Annual International Neuroendocrine Cancer Alliance summit (July 30, 2019)
- Breaking down the breakthroughs with Prof Anthony Gill AM (July 28, 2019)
- New discovery for pancreatic neuroendocrine tumors (pNETS) (July 28, 2019)
- Aretha Franklin tribute show benefits cancer research (July 28, 2019)
- Breakfast with Victorian Governor (July 28, 2019)
- July 2019 (July 25, 2019)
- June 2019 (June 25, 2019)
- CNSA Pre Congress Symposium (June 25, 2019)
- CNSA Annual Congress 2019 Melbourne (June 25, 2019)
- Unicorn Foundation thanks donors (June 23, 2019)
- Adventure Challenge Call for Interest (June 23, 2019)
- GP Education Forum (June 23, 2019)
- CONTROL NETS Clinical Trial Update (June 19, 2019)
- Study shows immunotherapy combination shrinks rare NET cancer (June 16, 2019)
- GP Information Collection Project (June 16, 2019)
- 3km walk for Melbourne Marathon (June 13, 2019)
- May 2019 (May 25, 2019)
- Tour de Cure donation (May 7, 2019)
- INCA welcomes new members (May 7, 2019)
- NET Registry and Patient App starts rollout (April 29, 2019)
- Multidisciplinary approach highlights Nurses role in NETs care (April 29, 2019)
- Bollywood actor returns to work (April 29, 2019)
- Promising results from Phase II clinical trial (April 29, 2019)
- Let's BE FAIR with government cancer funding (April 28, 2019)
- April 2019 (April 25, 2019)
- Fowles Wine Farmgate Lunch Feast 2019 (March 27, 2019)
- ENETS session - High grade classification (March 26, 2019)
- ENETs Overview (March 26, 2019)
- Peter MacCallum Centre of Excellence in Cellular Immunotherapy (March 26, 2019)
- VCCC Monday Lunch Live events (March 26, 2019)
- March 2019 (March 25, 2019)
- Neuroendocrine Tumour Treatment and Wellness Care Plan (February 28, 2019)
- NSW Ambulance Authorised Care Plans (February 27, 2019)
- The David Trophy Fundraiser (February 27, 2019)
- Petition update (February 27, 2019)
- Optimising the Cancer Nutrition Path (February 26, 2019)
- February 2019 (February 25, 2019)
- Breakthrough from Weill Cornell Medicine (February 24, 2019)
- NETRF announces US$2.5 million in research funds (February 24, 2019)
- CNSA Pre Congress Symposium (February 24, 2019)
- Patient Symposium videos now online (January 30, 2019)
- Raising NETs awareness on radio (January 30, 2019)
- World Cancer Day February 4th (January 30, 2019)
- Unicorn 10 Year Gala Dinner October 12th Melbourne (January 30, 2019)
- Sign this petition for equitable access for all (January 30, 2019)
- Global NET Leadership Workshop (January 29, 2019)
- January 2019 (January 25, 2019)
- December 2018 (December 25, 2018)
- APNETS Wrap Up (November 29, 2018)
- NET Patient Symposium (November 28, 2018)
- Doyle Hamburger Fundraiser (November 28, 2018)
- REA fundraises for Aaron (November 28, 2018)
- Australasian Gastro-Intestinal Trials Group (AGITG) ASM (November 26, 2018)
- Clinical Oncology Society of Australia (COSA) ASM Wrap (November 26, 2018)
- UF Consumer Advisory Group (CAG) meets in Melbourne (November 26, 2018)
- World NET Cancer Day 2018 (November 26, 2018)
- November 2018 (November 25, 2018)
- Rare Cancer on Radar; Survivor's Battle for an Answer Takes Four Years (November 10, 2018)
- Unicorn Foundation release cancer infographics in 7 alternative languages (November 10, 2018)
- A penny for your thoughts (October 30, 2018)
- INCA poster wins "Best Poster" at ESMO in Munich (October 29, 2018)
- Kate runs half marathon (October 29, 2018)
- Join us for NETwalk on November 10th! (October 29, 2018)
- National Oncology Alliance (NOA) wants more subsidies for rare cancers (October 29, 2018)
- Great news - extension of Clinical Trial (October 29, 2018)
- The Voice of NETs (October 29, 2018)
- October 2018 (October 25, 2018)
- September 2018 (September 25, 2018)
- The amazing Martelli family (September 24, 2018)
- $10 million funding for rare cancers (September 24, 2018)
- The O'Donoghue family fundraiser (September 24, 2018)
- New Zealand Patient Day and ICCN (September 24, 2018)
- Australian Cancer Trials (September 24, 2018)
- Calling all Volunteers #LetsTalkAboutNets (September 18, 2018)
- Sydney Vital 2018 Neuroendocrine Tumour Q&A Session (August 28, 2018)
- Endocrine Society of Australia Annual Scientific Meeting (August 28, 2018)
- August 2018 (August 25, 2018)
- Vale Aretha Franklin, the queen of soul (August 21, 2018)
- Vale the great Aretha Franklin, Simone Leyden speaks to Channel 9 (August 17, 2018)
- Vale Aretha Franklin, the queen of soul (August 16, 2018)
- The importance of trust between Patient and Oncologist (July 30, 2018)
- New support group starting in Gold Coast (July 29, 2018)
- Cancer Nurses Society of Australia Congress 2018 (July 29, 2018)
- Are you being charged for Gallium PET scans? (July 29, 2018)
- July 2018 (July 25, 2018)
- June 2018 (June 25, 2018)
- Sydney Vital 2018 Neuroendocrine Q&A Session 9th August (June 12, 2018)
- Peter Mac now an accredited NETs Centre of Excellence (May 29, 2018)
- Merkel Cell Cancer Evening (May 27, 2018)
- Sydney Vital and STEaM Neuroendocrine Tumour Preceptorship (May 27, 2018)
- Fowles Royal Harvest Feast 2018 (May 27, 2018)
- NETRF announces grant funding for NETs Research (May 27, 2018)
- May 2018 (May 25, 2018)
- Pat's High Tea Success (May 22, 2018)
- $1.5 million grant for Prof Rod Hicks and Peter Mac researchers (May 20, 2018)
- Want to become a UF Patient Advocate? (May 15, 2018)
- Australian Research led by Trisha Dwight (May 6, 2018)
- Announcement of $2.5 million for research into low survival cancers (April 29, 2018)
- Unicorn Foundation exhibits at 12th Congress WFNMB (April 29, 2018)
- April 2018 (April 25, 2018)
- History of Carcinoid Tumour diagnosis (April 25, 2018)
- Missing Unicorn on your Facebook Feed? (April 25, 2018)
- Mundell Challenge Golf Weekend (April 25, 2018)
- Perth Forum Wrap (April 25, 2018)
- Successful grants received from Tour de Cure (April 25, 2018)
- GP Information Collection (April 25, 2018)
- ENETs/INCA Patient Symposium March 2018 (March 28, 2018)
- INCA Meetings Wrap from Simone (March 28, 2018)
- Nutrition in NET survey (March 28, 2018)
- Thank you ASX Thomson Reuters (March 27, 2018)
- Thank you CNSA (March 27, 2018)
- ENETS wrap up from Kate Wakelin (March 27, 2018)
- ENETS wrap up from CAG member Katie Golden (March 27, 2018)
- March 2018 (March 25, 2018)
- Survivorship Conference Feb 2018 (March 7, 2018)
- Call out for Cancer Connect Volunteers (March 7, 2018)
- APNETs is coming to Melbourne (February 26, 2018)
- Survivorship Conference Feb 2018 (February 26, 2018)
- Call out for Cancer Connect Volunteers (February 26, 2018)
- Unicorn Foundation presenting at ENETS (February 26, 2018)
- February 2018 (February 25, 2018)
- Cupcake bake off to raise awareness (January 29, 2018)
- January 2018 (January 25, 2018)
- December 2017 (December 25, 2017)
- Financial Impact Study (December 20, 2017)
- Clinical Oncology Society of Autralia (COSA) Wrap 2017 (November 29, 2017)
- Select Committee Report - Funding for Research for Low Survival Cancers (November 28, 2017)
- Bad Mom's movie fundraiser (November 27, 2017)
- World NET Cancer Day 2017 (November 26, 2017)
- Open Garden Day a wonderful success (November 26, 2017)
- Thank you Matthew - a beautiful nude nut! (November 26, 2017)
- November 2017 (November 25, 2017)
- World NET Cancer Day 2017, Channel 9 News, National Coverage (November 10, 2017)
- World NET Cancer Day covered on Channel 9 News Adelaide (November 10, 2017)
- World NET Cancer Day 2017 (November 10, 2017)
- New videos to help you understand NETs (November 7, 2017)
- AGITG 2017 wrap up (October 30, 2017)
- Fran's fantastic craft fair (October 30, 2017)
- NET Nurse Kate completes Melbourne half marathon (October 30, 2017)
- October 2017 (October 25, 2017)
- Australian Cafes Support World NET Cancer Day (October 22, 2017)
- Multilingual Line now available (October 15, 2017)
- Erin's Beautiful Nude Nut (September 26, 2017)
- CAG Workshop 2017 (September 26, 2017)
- September 2017 (September 25, 2017)
- ISP - Consumer Perspective (September 24, 2017)
- Brisbane Patient Forum (September 24, 2017)
- August 2017 (August 25, 2017)
- Adelaide 2017 Gala Dinner Wrap Up (August 20, 2017)
- NET Research Foundation Announces New Grants (July 30, 2017)
- Federal Health Minister Greg Hunt provides grant to UF (July 30, 2017)
- Australia's National Patient & Carer Organisation Standing Committee (July 30, 2017)
- July 2017 (July 25, 2017)
- NET patients and Unicorn Foundation CEO appear at Senate Hearings (June 28, 2017)
- Adelaide Patient Forum (June 27, 2017)
- June 2017 (June 25, 2017)
- Wrap up from CNSA (June 21, 2017)
- Study shows rising rates of NET incidence, prevalence and survival (June 20, 2017)
- Detailed NET Patient Survey results from US (June 20, 2017)
- Running with Team Unicorn (May 30, 2017)
- Where does our fundraising and grant money go? (May 30, 2017)
- Help needed to get Lanreotide (Somatuline) on the PBS (May 29, 2017)
- Thank you - "Ride as One 2017 - Team Fathers" (May 29, 2017)
- Nutrition in NETs Study (May 28, 2017)
- Fowles Winery Fundraiser 2017 (May 28, 2017)
- Inaugural NET MDT at Monash Cancer Centre (May 28, 2017)
- May 2017 (May 25, 2017)
- Thank you - Sydney Cocktail Party 2017 (May 25, 2017)
- Tribute to a creative force - Dr Paul Priday (May 23, 2017)
- Patient involvement in ISP 2017 (April 27, 2017)
- "Mastermind fusion gene" may be associated with Pheos and Paras (April 27, 2017)
- Pancreas journal article (April 26, 2017)
- Sensational effort yet again by Cricket's Tour for a Cure (April 26, 2017)
- April 2017 (April 25, 2017)
- Recruitment onto NABNEC clinical trial open (April 2, 2017)
- UF Attends 14th Annual ENETs Conference (April 1, 2017)
- Registered charity tick (March 31, 2017)
- March 2017 (March 25, 2017)
- Amanda's incredible 3km swim (February 26, 2017)
- Thank you from the Rob MacGregor Research Fund (February 24, 2017)
- Breakthrough research into PNET genome sequencing (February 16, 2017)
- January 2017 (January 25, 2017)
- Senate Committee - Funding for research into low survival cancers (January 19, 2017)
- Lanreotide rejected by PBAC for listing on PBS for non-functional GEP NETs (January 19, 2017)
- "Talking Health" with Dr Sally Cockburn on all things NET Cancer (January 18, 2017)
- Ron Wilson opens up to Woman's Day about his wife's battle with NETs (January 18, 2017)
- Unicorn Foundation invited to speak at the first INCA/ENETs symposium (January 18, 2017)
- UF $1 million dollar research fund (January 7, 2017)
- December 2016 (December 25, 2016)
- Christmas 2016 (December 25, 2016)
- 4th World Theranostics Congress Wrap Up (December 21, 2016)
- CommNETS Update from our NET Nurse Kate Wakelin (December 20, 2016)
- Our Nurse Kate's inspirational 10k run at Melbourne Marathon (December 15, 2016)
- Ron Wilson Supports UF on Family Feud All Stars (November 30, 2016)
- Maggie's Annual Afternoon Tea (November 21, 2016)
- NET Patient Symposium Melbourne November 6 (November 20, 2016)
- Team Unicorn Enters The Spring Cycle And Raises $11,995! (November 20, 2016)
- 'Aspire to Inspire' - Thank you Sharon!! (November 16, 2016)
- World NET Cancer Day 2016 "Let's Talk About NETs" (November 9, 2016)
- Melbourne Cocktail Party Wrap Up! (November 4, 2016)
- ASX Thomson Reuters Raffle Tickets (November 1, 2016)
- Thank you "Crickets Tour for a Cure" Team! (September 1, 2016)
- New online chat sessions for NET Patients (August 28, 2016)
- August 2016 (August 25, 2016)
- The loss of a true patient champion (August 25, 2016)
- UF - Consumer Advisory Group (CAG) (August 24, 2016)
- INCA Patient Summit - Plovdiv Bulgaria (August 24, 2016)
- 1st Global NET Patient Survey published in Journal of Global Oncology (August 24, 2016)
- "Let's Talk About NETs" this World NET Cancer Day Nov 10 (August 1, 2016)
- June 2016 (June 25, 2016)
- Thank you John Cockayne! (June 15, 2016)
- Thank You Fowles Wine 2016 (May 30, 2016)
- Unicorn Foundation - Japan HTAi 2016 (May 30, 2016)
- CNSA 2016 Wrap Up By NET Nurse Kate Wakelin (May 29, 2016)
- Buy tickets in the People's Choice Lottery to support UF (May 25, 2016)
- Cricket's Tour for a Cure (May 25, 2016)
- Thank You to the CWA South Australia (May 3, 2016)
- Defining NETs - Research project now recruiting (May 2, 2016)
- Update on NABNEC Study (April 18, 2016)
- Fundraiser with furry friends (April 10, 2016)
- SCG to MCG Bike Ride Fundraiser (March 8, 2016)
- Diet and Nutrition Webinar 2 - Save the Date 30th May 2016 (March 7, 2016)
- February 2016 (February 21, 2016)
- Monthly NET Cancer Research Update (February 14, 2016)
- Theranostics World Congress 2016 (February 10, 2016)
- Help us improve our Support Groups (January 27, 2016)
- Want to become a UF Patient Advocate? (January 27, 2016)
- December 2015 (December 19, 2015)
- Senate Inquiry Report and Recommendations (December 14, 2015)
- Federal Health Department Grant (December 13, 2015)
- Last day for ticket sales in the ASX Thomson Reuters raffle March 6! (December 9, 2015)
- November 2015 (November 19, 2015)
- World NET Cancer Day November 10 (November 5, 2015)
- Professor Rod Hicks inducted into the Australian Academy of Health and Medical Sciences (October 11, 2015)
- Unicorn Foundation Speaks at Senate Inquiry (October 11, 2015)
- Clinicians embrace global survey results at ANZNET Meeting (October 7, 2015)
- Fancy a ride in Rally Car for a good cause? (October 7, 2015)
- UF welcomes NET Patient Support Nurse Kate Wakelin (October 6, 2015)
- 2015 INCA Patient Summit (October 6, 2015)
- NET trial results presented at European Cancer Congress 2015 (October 6, 2015)
- UF heads to Clinical Oncology Society of Australia Annual Conference (October 6, 2015)
- Thank you from the Rob MacGregor Research Fund (September 30, 2015)
- Line dancing to celebrate a very special lady (September 30, 2015)
- August 2015 (August 19, 2015)
- ASX Thomson Reuters Charity Race Day (August 4, 2015)
- UF Research at Cancer Nurses Society of Australia Congress (July 27, 2015)
- Thank You Adelaide! (July 21, 2015)
- June 2015 (June 19, 2015)
- Mini Mos 2015 (June 3, 2015)
- Inaugural WA Patient Support Group (June 3, 2015)
- Raising awareness in Canberra (June 3, 2015)
- Thank You! - Sydney Cocktail Party 2015 (May 25, 2015)
- May 2015 (May 19, 2015)
- NET Nurse Petition Update (May 4, 2015)
- Lutate access in NSW (May 4, 2015)
- Prof Jas Samra - APHPBA (May 4, 2015)
- Mosman Primary visit Royal North Shore Hospital (May 4, 2015)
- Petition for NET Nurse Funding (May 4, 2015)
- Glenn and Sarah's trip to Spain to raise awareness (May 3, 2015)
- WACOG Meeting post ENETs Meeting (April 29, 2015)
- Senate Inquiry - Availability of new, innovative and specialist cancer drugs in Australia (April 20, 2015)
- Thank you to Fowles Wine 2015 (April 14, 2015)
- NET Nurse Service - Patient Survey (April 12, 2015)
- ENETs 2015 Wrap Up (March 31, 2015)
- Sydney Cardiologists Perform World First (March 22, 2015)
- February 2015 (February 19, 2015)
- Thank You Tour De Cure (February 18, 2015)
- Linda Dessau appointed Victorian Governor (February 16, 2015)
- GO THE TAN - Melbourne 28 February (February 9, 2015)
- APNETs Conference 2014 (February 9, 2015)
- December 2014 (December 19, 2014)
- Support Us by Buying a Raffle Ticket (December 15, 2014)
- ICAP Charity Day December 3 (December 4, 2014)
- World NET Cancer Day 2014 (November 10, 2014)
- INCA Net Patient Summit 2014 (July 15, 2014)
- Unicorn Foundation Meets With Private Healthcare Australia (July 15, 2014)
- Peter MacCallum Publishes LuTate Study Results (May 30, 2014)
- Sydney Cocktail Party 2014 (May 19, 2014)
- Tour De Cure 2014 (April 28, 2014)
- Unicorn Foundation Football Match (April 28, 2014)
- CDA Stakeholder Forum (March 30, 2014)
- Advocating for Equitable Access to Treatments (March 24, 2014)
- Pharmaceutical Benefits Advisory Committee to Consider Everolimus for Metastatic Pancreatic Neuroendocrine Cancer (January 22, 2014)
- Updat from Dr Christopher Yates (December 4, 2013)
- CONTROL NETS Randomised Controlled Clinical Trial (December 4, 2013)
- Inagural APNETS Conference (December 4, 2013)
- Sunitinib (Sutent) Receives PBS Listing for Metastatic pNET (November 21, 2013)
- South Australian Gastroenterpancreatic (GEP) Neuroendocrine Cancer Care Pathway (November 21, 2013)
- Lime'onade Fundraiser (October 10, 2013)
- NET Awareness Campaign - Jobs Movie (August 28, 2013)
- Funding of PRRT (Lutate) in New South Wales (August 18, 2013)
- City 2 Surf 2013 (August 18, 2013)
- Mini Mos Community Fun Run 2013 (August 15, 2013)
- Thank You - Sydney Cocktail Party June 1 (June 11, 2013)
- NeuroEndocrine Cancer New Zealand (May 20, 2013)
- ENETS Barcelona 2013 (April 14, 2013)
- Drive 2 Drive Awareness About NETS (February 5, 2013)
- ANSTO Gets $5 Million Funding from Federal Government (February 5, 2013)
- AMP Foundation Donates $9,000 to Support 2012 City 2 Surf Team (February 5, 2013)
- Nets for NETS Day November 9 2012 (November 27, 2012)
- Patients Encouraged to Join the NET Cancer Connections Online Group (November 27, 2012)
- In The Media: Body and Soul (November 17, 2012)
- In The Media: Gold Coast Bulletin (November 16, 2012)
- In The Media: MX Nets for NETS Day (November 7, 2012)
- In The Media: Adelaide Advertiser Nets for NETS Day (November 4, 2012)
- In The Media: NineMSN Shop Til You Drop (October 30, 2012)
- Research Into Oncolytic Virus for NETs - iCancer (October 17, 2012)
- In The Media: Channel 7 NET Cancer Hope (August 30, 2012)
- In The Media: Body and Soul II (March 10, 2012)
- In The Media: Top 10 Australian Logos of All Time (December 31, 2011)
- In The Media: Herald Sun Baby Noah Comes First (November 10, 2011)
- In the Media: Illawarra Mercury Daily Battle with Pain as Govt Holds Back Funding (July 22, 2011)
Pages
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Events
- Canberra NET Patient Forum (April 17, 2026)
- Will Norman Nurse Webinar on Neuroendocrine Cancer 2026 (January 29, 2026)
- Living with NETs - March 2026 (December 18, 2025)
- Sydney NET Patient Forum (September 26, 2025)
- Equitable Access to Cancer Care: Reflection on the Senate Inquiry Parliamentary Event (August 28, 2025)
- Will Norman Nurse Webinar on Neuroendocrine Cancer (May 26, 2025)
- NET Patient Forum Adelaide (April 2, 2025)
- Living with NETs - October 2025 (March 14, 2025)
- Living with NETs - July 2025 (March 14, 2025)
- Living with NETs - March 2025 (January 7, 2025)
- Melbourne NET Patient Forum 2024 (October 1, 2024)
- Brisbane NET Patient Forum 2024 (March 21, 2024)
- Living with NETs - October 2024 (January 16, 2024)
- Living with NETs - July 2024 (January 16, 2024)
- Living with NETs - March 2024 (January 16, 2024)
- Launceston NET Patient Forum 2023 (May 30, 2023)
- Perth NET Patient Forum 2023 (May 18, 2023)
- Adelaide NET Patient Forum 2023 (May 18, 2023)
- Living with NETS - October 2023 Intake (May 2, 2023)
- Living with NETS - July 2023 Intake (May 2, 2023)
- Living with NETS (February 21, 2023)
- Living with NETS (September 27, 2022)
- Brisbane NET Patient Forum (September 27, 2022)
- Peter MacCallum 25th Anniversary of PRRT with Professor Rod Hicks (August 12, 2021)
- The Future of Precision Oncology in Nuclear Medicine (June 21, 2021)
- NETs Q&A 9 June 2021 (May 18, 2021)
- Nutrition and NETs Webinar - the latest Research (November 18, 2020)
- State of the Nation (October 6, 2020)
- Making Sense of Merkel Cell Carcinoma (September 21, 2020)
- CNSA Webinar: Demystifying Neuroendocrine Tumours (NETS) - not as rare as you think! (June 16, 2020)
- Let's WALK for NETs (April 20, 2020)
- NET Support Group - Canberra (March 5, 2020)
- NET Support Group - NSW Sydney Adventist Hospital (March 5, 2020)
- Navigating NETs - Legal and Financial Issues (February 24, 2020)
- Wagga Wagga NET Patient Forum (January 16, 2020)
- Webinar - Approaching the End of Life (September 29, 2019)
- Adelaide NET Patient Forum (August 11, 2019)
- Hobart NET Patient Forum (July 3, 2019)
- Canberra NET Patient Forum (July 3, 2019)
- 10th Anniversary Gala Dinner (June 13, 2019)
- Brisbane NET Patient Forum (May 6, 2019)
- Sign up for World NET Cancer Day Nov 10th (April 9, 2019)
- Sign up for World NET Cancer Day Nov 10th (August 22, 2018)
- NET Patient Symposium 2018 (May 7, 2018)
- Perth NET Patient Forum (February 26, 2018)
- Webinar - Rehabilitation and Exercise Physiology in NETs (September 26, 2017)
- Sign up for World NET Cancer Day Nov 10th (August 28, 2017)
- Brisbane NET Patient Forum (July 10, 2017)
- Webcast - Adelaide NET Patient Forum (May 9, 2017)
- Adelaide NET Patient Forum (April 2, 2017)
- 2017 Webinar 2 - Anaesthesia and Neuroendocrine Tumours (April 2, 2017)
- 2017 Adelaide Unicorn Foundation Gala Dinner (March 13, 2017)
- Tasmanian NET Forum (March 7, 2017)
- 2017 Sydney Cocktail Party (February 26, 2017)
- 2017 Webinar 1 - Unravelling the mysteries; Pheochromocytoma, paraganglioma, MEN (February 1, 2017)
- Rob MacGregor Trivia Night (December 18, 2016)
- Webinar 4 - Current drug treatments in NETs and what for the future? (September 5, 2016)
- Sydney Vital Q&A (August 3, 2016)
- Let's Talk About NETs - World NET Cancer Day (August 1, 2016)
- WA Neuroendocrine Tumour Forum Wednesday 3rd August 2016 (July 11, 2016)
- Webinar 3 - NETs Under the Microscope (June 6, 2016)
- Melbourne Cocktail Party (May 23, 2016)
- NET Patient Symposium (April 28, 2016)
- Webinar 2 - Diet and Nutrition Part 2 (March 7, 2016)
- Webinar 1 - Diet and Nutrition (February 14, 2016)
- Rob MacGregor Trivia Night (May 26, 2015)
- 2015 Adelaide Gala Dinner (January 21, 2015)
- 2015 Sydney Cocktail Party (December 1, 2014)
NET Specialists
- Von Hippel-Lindau Specialists WA (January 22, 2026)
- Von Hippel-Lindau Specialists VIC (January 22, 2026)
- Von Hippel-Lindau Specialists QLD (January 22, 2026)
- Von Hippel-Lindau Specialists NSW (January 22, 2026)
- Neuroendocrine Cancer Specialists ACT (November 24, 2025)
- Neuroendocrine Cancer Specialists TAS (November 24, 2025)
- Neuroendocrine Cancer Specialists WA (November 24, 2025)
- Neuroendocrine Cancer Specialists SA (November 24, 2025)
- Neuroendocrine Cancer Specialists QLD (November 24, 2025)
- Neuroendocrine Cancer Specialists VIC (November 24, 2025)
- Neuroendocrine Cancer Specialists NSW (November 24, 2025)
NET Types
- Goblet cell adenocarcinoma (GCA) (March 25, 2026)
- Breast Neuroendocrine Cancer (November 27, 2025)
- Tuberous Sclerosis (November 27, 2025)
- Neurofibromatosis Type 1 (November 27, 2025)
- SDH (Succinate Dehydrogenase) Mutations (November 27, 2025)
- Neuroblastoma (November 27, 2025)
- Adrenocortical Carcinoma (November 27, 2025)
- Medullary thyroid Carcinoma (November 27, 2025)
- Ovarian and Endometrial Neuroendocrine Cancer (November 27, 2025)
- Prostate Neuroendocrine Cancer (November 27, 2025)
- Testicular Neuroendocrine Cancer (November 27, 2025)
- Thymic Neuroendocrine Cancer (November 27, 2025)
- Rectal Neuroendocrine Cancer (November 27, 2025)
- Gastrointestinal Cancer (November 27, 2025)
- Appendiceal Neuroendocrine Cancer (November 27, 2025)
- Large Bowel Neuroendocrine Cancer (November 27, 2025)
- Duodenal Neuroendocrine Cancer (November 27, 2025)
- Gastric Neuroendocrine Cancer (Stomach) (November 27, 2025)
- Merkel cell carcinoma (November 27, 2025)
- Zollinger–Ellison Syndrome (November 27, 2025)
- Von Hippel-Lindau (VHL): Understanding and Management (November 27, 2025)
- Multiple Endocrine Neoplasias (MEN) (November 27, 2025)
- Gastrinoma (November 27, 2025)
- VIPoma (November 27, 2025)
- Insulinoma (November 27, 2025)
- Pancreatic Neuroendocrine Cancer (November 27, 2025)
- Hormonal Syndromes (November 27, 2025)
- Small Bowel Neuroendocrine Cancer (November 27, 2025)
- Small Cell Neuroendocrine Cancer (November 27, 2025)
- Functioning and Non-functioning Neuroendocrine Tumours (November 27, 2025)
- Lung Neuroendocrine Carcinomas (November 27, 2025)
- Large Cell Neuroendocrine Cancer (November 27, 2025)
- Phaeos and Paras (November 27, 2025)
Our People
- Stephen Clarke (April 1, 2026)
- Prof Nick Pavlakis (January 13, 2026)
- Prof Michael Michael (January 13, 2026)
- A/Prof Grace Kong (January 13, 2026)
- Dr Piyush Grover (January 13, 2026)
- A/Prof David Wyld (January 13, 2026)
- Dr David Chan (January 13, 2026)
- A/Prof Gabrielle Cehic (January 13, 2026)
- Prof Tim Price (January 13, 2026)
- Geoff Tomlin (November 28, 2025)
- Lynda Dunstone (November 28, 2025)
- Karen Vial (November 28, 2025)
- Therese Townsend (November 28, 2025)
- Sharon Rickard (November 28, 2025)
- Amanda Stork (November 28, 2025)
- Jacqueline Gillespie (November 28, 2025)
- Dr John Leyden (November 25, 2025)
- Cassie Miller (November 25, 2025)
- Michael Usher (November 25, 2025)
- Philippa Morgan (November 25, 2025)
- Kirsty Mead (November 25, 2025)
- Michael Curtin (November 25, 2025)
- Dr David Chan (November 25, 2025)
- Ian George (November 25, 2025)
- Dr John Leyden AM (November 25, 2025)
- Simone Leyden AM (November 25, 2025)
- Adie Williams (November 7, 2025)
- Kara Tyndall (November 7, 2025)
- Amanda Stork (November 7, 2025)
- Caley Schnaid (November 7, 2025)
- Dana Hart (November 7, 2025)
- Tammy Hagan (November 7, 2025)
- Isobel Gower (November 7, 2025)
- Ciara Connolly (November 7, 2025)
- Cristelle Gilmour (November 7, 2025)
- Ferial (Fee) Amputch (November 7, 2025)
- Kahlia Wolsley (November 7, 2025)
- Meredith Cummins (November 7, 2025)
Patient Stories
- Denise, NSW (April 21, 2026)
- Clinton, NSW (April 14, 2026)
- Nat, SA (March 3, 2026)
- Jessica, WA (March 3, 2026)
- Dee, QLD (January 30, 2026)
- Ruth Else (December 1, 2025)
- Brydie's Story (November 27, 2025)
- Dan, VIC (October 7, 2025)
- Karen, SA (October 5, 2025)
- Roxanne, ACT (October 1, 2025)
- Judy, SA (October 1, 2025)
- Lauren, Tas (October 1, 2025)
- Allison, W.A. (July 15, 2025)
- Cassie, QLD (May 28, 2025)
- Lana, NSW (May 19, 2025)
- Simon, VIC (May 18, 2025)
- Vanessa, ACT (May 12, 2025)
- Patricia, NSW (April 21, 2025)
- Jo, QLD (April 21, 2025)
- Bronwyn, NSW (March 19, 2025)
- Chris, WA (February 9, 2025)
- Coko, NSW (November 19, 2024)
- Terri, VIC (November 11, 2024)
- Michael, QLD (October 7, 2024)
- Chris, VIC (October 3, 2024)
- Brad, VIC (July 16, 2024)
- Brian, ACT (June 2, 2024)
- Mary, Joyce and Mishy, QLD (April 24, 2024)
- Hamish, WA (April 22, 2024)
- Gwenda, QLD (April 22, 2024)
- Amelia, QLD (March 25, 2024)
- Chris, NSW & LA (March 4, 2024)
- Ryan, NSW (March 4, 2024)
- Ann, VIC (February 27, 2024)
- Steven, TAS (February 23, 2024)
- Jacqueline, NSW (February 6, 2024)
- Jeffrey, VIC (January 17, 2024)
- Suzie, NSW (January 10, 2024)
- Mel, WA (January 10, 2024)
- Sandi, NSW (January 10, 2024)
- Brad, WA (December 12, 2023)
- Jamie, SA (December 12, 2023)
- Bree, NSW (December 10, 2023)
- Michele, WA (November 21, 2023)
- Amy, NSW (November 21, 2023)
- Ros, TAS (November 5, 2023)
- Paul, NSW (November 5, 2023)
- Shirley, QLD (November 1, 2023)
- Ashley, W.A. (October 16, 2023)
- Kim, TAS (October 16, 2023)
- Peter, ACT (October 4, 2023)
- Angela, ACT (October 4, 2023)
- Kelly, W.A. (October 3, 2023)
- Catherine, TAS (September 25, 2023)
- Linda, TAS & NSW (September 24, 2023)
- Denae, SA (September 11, 2023)
- Michelle, QLD (September 5, 2023)
- Sasha, VIC (September 5, 2023)
- Tracey, WA (August 15, 2023)
- Denzil, ACT (August 7, 2023)
- Denise, TAS (August 1, 2023)
- John, NSW (July 27, 2023)
- Geoff Tomlin, TAS (July 25, 2023)
- Rob, TAS (July 12, 2023)
- John, VIC (July 12, 2023)
- Joe, QLD (June 15, 2023)
- Greg, QLD (December 1, 2022)
- Cathy, QLD (December 1, 2022)
- Cindy, NSW (December 1, 2022)
- Caitlin, TAS (October 5, 2022)
- Wendy, Caloundra, QLD (September 14, 2022)
- Michelle, NSW (August 2, 2022)
- Bob, Culburra Beach, NSW (October 4, 2021)
- Birgitte, South Australia (July 13, 2021)
- Doreen, Western Australia (July 12, 2021)
- Alison Danis (October 19, 2020)
- David Lockwood, NSW (August 31, 2020)
- Kristen Leknius, VIC (June 24, 2020)
- Demi, WA (June 18, 2020)
- Jackie, NSW (April 13, 2020)
- Melissa Davis, VIC (February 26, 2020)
- Noreen McGowan, NSW (January 29, 2020)
- Rachel Kerney, NSW (September 24, 2019)
- Margaret Powell, WA (August 26, 2019)
- Sharon Rickard, VIC (April 25, 2018)
- Jan Tinkler (March 28, 2018)
- Kim McLean, QLD (February 26, 2018)
- Resh's Story (January 31, 2018)
- Lynda Dunstone, ACT (October 30, 2017)
- Wayne Gatley (September 24, 2017)
- Lyn Balzer, NSW (August 28, 2017)
- Jan Mumford (July 30, 2017)
- Amanda, QLD (May 29, 2017)
- Amanda Massey, QLD (March 28, 2017)
- Grant Mundell, NSW (January 30, 2017)
- Catherine Sutton, NSW (January 30, 2017)
- Rachel Burnett, QLD (January 29, 2017)
- Helen McDonald (November 30, 2016)
- Suzanne Stewart, N.T. (December 14, 2014)
- Tayla Barreau, SA (December 11, 2014)
Resources
- Grief (April 14, 2026)
- What is the Neuroendocrine System and how do Neuroendocrine Tumours develop? - Mandarin Translation (March 25, 2026)
- Will Norman Nurse Webinar #2 (March 25, 2026)
- Gratitude (March 17, 2026)
- Suzie's Story (March 5, 2026)
- Mel's Story (March 5, 2026)
- Sandi's Story (March 5, 2026)
- Brad's Story (March 5, 2026)
- Jamie's Story (March 5, 2026)
- Problem-Solving during a Neuroendocrine Cancer Diagnosis (March 3, 2026)
- World Cancer Day: Honouring Every Unique Cancer Story (February 20, 2026)
- NETs in Children and Young Adults (January 28, 2026)
- Vision Changes in Neuroendocrine Tumours (January 28, 2026)
- Chemotherapy for Neuroendocrine Tumours (January 28, 2026)
- Neuroendocrine Tumours and Cardiac Symptoms (January 28, 2026)
- Neuroendocrine Tumour Development (January 28, 2026)
- Endoscopic Procedures for Diagnosing Gastrointestinal NETs (January 28, 2026)
- Age and Gender as Risk Factors for NETs (January 28, 2026)
- Metastasis and Prognosis in Neuroendocrine Cancer (January 28, 2026)
- How NETs Are Treated with Embolisation and Ablation (January 28, 2026)
- NETs, SSA Treatments and Gall Bladder Issues (January 28, 2026)
- Targeted Therapies in Neuroendocrine Tumour Treatment (January 28, 2026)
- Role of Nuclear Medicine in NET Diagnosis (January 28, 2026)
- Challenges in Diagnosing Rare Neuroendocrine Tumours (January 28, 2026)
- Anatomic Distribution of Neuroendocrine Tumours (January 28, 2026)
- Symptoms of Rare NETs in Uncommon Locations (January 28, 2026)
- Unexplained Weight Loss in NETs Patients (January 28, 2026)
- Emerging Immunotherapies for NETs (January 28, 2026)
- Radiological Imaging and Neuroendocrine Tumour Localisation (January 28, 2026)
- Emotional and Psychological Impact of NET Symptoms (January 28, 2026)
- Potential Carcinogens and Neuroendocrine Tumour Risk (January 28, 2026)
- Neuroendocrine Tumours and Bone Health (January 28, 2026)
- Abdominal Pain in NETs (January 28, 2026)
- Hormonal Imbalances in Neuroendocrine Tumours (January 28, 2026)
- Creon Medication (January 28, 2026)
- Neuroendocrine Tumours and Neurological Symptoms (January 28, 2026)
- Skin Changes and NETs (January 28, 2026)
- Lutetium-177 Trials in Australia (January 28, 2026)
- Blood Tests for Neuroendocrine Tumours (January 28, 2026)
- Dotatate Scan Neuroendocrine Tumour (January 28, 2026)
- Neuroendocrine Tumours and Blood Sugar Levels (January 28, 2026)
- Fatigue and Weakness in NET Patients (January 28, 2026)
- Ki-67 Proliferation Index in NET Grading (January 28, 2026)
- Talking to children and teenagers about cancer (January 28, 2026)
- Complementary Therapies (January 28, 2026)
- Employment and Cancer (January 28, 2026)
- Preparing for the holiday season (January 28, 2026)
- Navigating Guilt (January 28, 2026)
- International Day of People with Disability (January 28, 2026)
- Self-Care What is it? (January 28, 2026)
- Supporting the carers of people with Neuroendocrine cancer (January 28, 2026)
- Tolerating Uncertainty (January 28, 2026)
- Understanding Scanxiety (January 28, 2026)
- Mental Health: Taking steps to combat stress (January 28, 2026)
- RU OK? Today and any day, because life happens every day (January 28, 2026)
- Sleep Hygiene (January 28, 2026)
- Hormonal Imbalances as a Contributing Factor to NETs (January 28, 2026)
- Immunological Factors in Neuroendocrine Tumour Development (January 28, 2026)
- Gastroenteropancreatic NET Grading: Variations and Implications (January 28, 2026)
- Chronic Inflammation and Neuroendocrine Cancer (January 28, 2026)
- FDG PET Scans (January 28, 2026)
- Diagnostic Imaging Techniques for Neuroendocrine Tumours (January 28, 2026)
- Biopsy Procedures in Neuroendocrine Cancer Diagnosis (January 28, 2026)
- Radiation Therapy Treatment (January 28, 2026)
- Cellular Mutations in Neuroendocrine Cancer (January 28, 2026)
- Common Sites of Neuroendocrine Tumour Occurrence (January 28, 2026)
- Gastrointestinal Symptoms of NETs (January 28, 2026)
- Treatment for Pancreatic Neuroendocrine Tumours (January 28, 2026)
- Neuroendocrine Tumour Liver Metastases (January 28, 2026)
- Metastatic Neuroendocrine Cancer (January 28, 2026)
- Understanding the Neuroendocrine System (January 28, 2026)
- Life Expectancy (January 28, 2026)
- Parenting through Cancer (January 28, 2026)
- Family Communication During a Cancer Diagnosis (January 28, 2026)
- Neuroendocrine Cancer Diagnosis (January 28, 2026)
- Large Cell Neuroendocrine Carcinoma Lung Treatment (January 28, 2026)
- Genomic Profiling in Neuroendocrine Cancer (January 28, 2026)
- Diagnosing Phaeochromocytomas and Paragangliomas (PPGLs) (January 28, 2026)
- PRRT Treatment (January 28, 2026)
- Surgery (January 28, 2026)
- Neuroendocrine Cancer Biomarkers (January 28, 2026)
- Hereditary Factors in Neuroendocrine Tumours: Genetics, Risks, and Testing (January 28, 2026)
- What is the Neuroendocrine System and how do Neuroendocrine Tumours develop? - Arabic Translation (January 27, 2026)
- Symptoms Types and Diagnosis of Neuroendocrine Tumours (NETs) - Arabic Translation (January 27, 2026)
- Symptoms Types and Diagnosis of Neuroendocrine Tumours (NETs) - Mandarin Translation (January 27, 2026)
- Neuroendocrine Tumour Education Course (January 27, 2026)
- Neuroendocrine Cancer Symptoms: Full Interview with Dr David Chan (January 27, 2026)
- Diagnosing Phaeochromocytomas and Paragangliomas (PPGLs) (January 27, 2026)
- Quick Reference Guide for Healthcare Professionals (January 27, 2026)
- Surgery Fact Sheet (January 27, 2026)
- Somatostatin Analogues (SSAs) (January 27, 2026)
- Clinical Trials (January 27, 2026)
- Facebook Friday 05/06/2020 - Somatostatin Analogues (January 27, 2026)
- Radiation Therapy (January 27, 2026)
- Facebook Friday 12/6/2020 Associate Professor Ben Thomson, Surgery and NETs (January 27, 2026)
- Questions to ask your Doctor (January 27, 2026)
- Complementary Therapies (January 27, 2026)
- Facebook Friday 24/7/2020 - Medicinal Cannabis with A/Prof Judith Lacey (January 27, 2026)
- Facebook Friday - Let's talk about Palliative Care with Dr Sonia Fullerton (January 27, 2026)
- Questions to Ask (January 27, 2026)
- Facebook Friday - Let's talk about surgery with Prof Jas Samra (January 27, 2026)
- PRRT (January 27, 2026)
- Palliative Care & End of Life Care Resource List (January 27, 2026)
- Merkel Cell Carcinoma (January 27, 2026)
- Liver Directed Therapies (January 27, 2026)
- Para & Phaeo Factsheet (January 27, 2026)
- Facebook Friday 6/11/2020 - Dr Grace Kong, Nuclear Medicine imaging and therapeutics (January 27, 2026)
- Making Sense of Merkel Cell Carcinoma Webinar 5/11/2020 (January 27, 2026)
- Cardiac Issues in NETs - Dr Daniel Cehic (January 27, 2026)
- Facebook Friday 17/4/2020 - Exercise Physiologist A/Prof Lainie Cameron (January 27, 2026)
- Navigating NETs - Legal and Financial Issues (January 27, 2026)
- Facebook Friday 31/10/2020 - National Bandana Day, Sanchana Venkatesh (January 27, 2026)
- Facebook Friday 07/05/2021 - Talking about NETs , allergies & carcinoid crisis, with Dr John Leyden (January 27, 2026)
- Facebook Friday 12/02/2021 - Informed Financial Consent, guest Megan Varlow (Cancer Council Aust.) (January 27, 2026)
- Facebook Friday 4/12/2020 - Nutrition Q&A with Erin Laing (January 27, 2026)
- Nutrition and NETs Webinar - the latest research (January 27, 2026)
- Facebook Friday - 27/11/2020 - Meredith Cummins, Let's talk about educating our GPs about NETs! (January 27, 2026)
- Facebook Friday 20/11/2020 - Sexuality and NETs (Part 2) feat. guest expert Dr Amanda Hordern (January 27, 2026)
- Facebook Friday 13/11/2020, Sexuality and NETs (Part 1) (January 27, 2026)
- World NET Cancer Day Webinar 10 NOV 20 (January 27, 2026)
- Exercise The Facts (January 27, 2026)
- Flushing - All The Facts (January 27, 2026)
- Financial Assistance (January 27, 2026)
- NETs and Genetics (January 27, 2026)
- Managing Diarrhoea With A Neuroendocrine Tumour (January 27, 2026)
- Staging and Grading of NETs (January 27, 2026)
- Psychological Tips and Mental Health (January 27, 2026)
- Optimal Care Pathway for Neuroendocrine Tumours (NETs) (January 27, 2026)
- Neuroendocrine Cancer Symptoms: Full Interview with Prof Nick Pavlakis (January 27, 2026)
- Neuroendocrine Cancer Symptoms: Full Interview with Dr John Leyden (January 27, 2026)
- Neuroendocrine Cancer Symptoms: Specialist interview: Dr Bill Macdonald and Dr David Ransom (January 27, 2026)
- Neuroendocrine Cancer Symptoms: With Meredith Cummins (January 27, 2026)
- Neuroendocrine Cancer Symptoms: With Dr Gabrielle Cehic AM (January 27, 2026)
- Patient Card - Carcinoid Crisis Medical Alert (January 27, 2026)
- Online Support Groups (January 27, 2026)
- Carcinoid Crisis and Anaesthesia (January 27, 2026)
- WA Support Groups (January 27, 2026)
- TAS Support Groups (January 27, 2026)
- NECA Private FB Discussion Group (January 27, 2026)
- Carers Private FB Support Group (January 27, 2026)
- What is the Neuroendocrine System and how do Neuroendocrine Tumours develop? (January 27, 2026)
- Treatment & Wellness Care Plan (January 27, 2026)
- The Guide to Best Cancer Care for Neuroendocrine Cancer (January 27, 2026)
- Neuroendocrine tumours: A guide for healthcare professionals (January 27, 2026)
- Lets Talk About Nuclear Medicine 27 April 2022 (January 27, 2026)
- Neuroendocrine tumours: A guide for patients and carers (January 27, 2026)
- ONJCRI Immunotherapy Trial: Nivolumab & Ipilimumab for Rare and Advanced Cancers (January 27, 2026)
- PARP Inhibitor With 177Lu-DOTA-Octreotate PRRT in Patients With Neuroendocrine Tumours (PARLuNET) (January 27, 2026)
- Webinar - Anaesthetics and NETs (January 27, 2026)
- Compose GEP-NET Phase III Trial (January 27, 2026)
- Acronyms & Terminology for Neuroendocrine Cancer Patients (January 27, 2026)
- Phase 3 Trial of CAM2029 vs Standard Treatments in GEP-NET Patients (January 27, 2026)
- AUS-NET - Neuroendocrine Tumours (January 27, 2026)
- Treatment (January 27, 2026)
- VHL Belzutifan fact sheet (January 27, 2026)
- VHL Treatments (January 27, 2026)
- Symptom Management and Treatment (January 27, 2026)
- VHL Questions to ask (January 27, 2026)
- Medical Management (January 27, 2026)
- VHL Booklet (January 27, 2026)
- Peptide receptor radionuclide therapy (PRRT) (January 27, 2026)
- NeuroEndocrine Cancer Australia Thankyou Video (January 27, 2026)
- Facebook Friday - 20/8/2021 Advanced care planning (January 27, 2026)
- Facebook Friday 18/06/2021 - Let's talk about NETs and anxiety (January 27, 2026)
- Facebook Friday 4/6/2021 - Let's talk NETs & Fertility - Dr Fleur Cattrall & Dr Sharyn Stock-Myer (January 27, 2026)
- Symptoms Types and Diagnosis of Neuroendocrine Tumours (NETs) (January 27, 2026)
- Carcinoid Syndrome (January 27, 2026)
- Carcinoid Heart Disease (January 27, 2026)
- Carcinoid Crisis (January 27, 2026)
- Quick Facts (January 27, 2026)
- Genetic NETs explained (January 27, 2026)
- Diagnosis (January 27, 2026)
- Diet (January 27, 2026)
- Associated Conditions (January 27, 2026)
- About NETs (January 27, 2026)
- Vitamin and mineral deficiencies (January 27, 2026)
- 5HIAA (January 27, 2026)
- Travel Assistance (January 27, 2026)
- Nutrition and Neuroendocrine Tumours (January 27, 2026)
- Living with a NET (January 27, 2026)
- NSW & ACT Support Groups (January 27, 2026)
- Australian Patient Travel Subsidy Scheme (January 27, 2026)
- Patient Card - Bathroom (January 27, 2026)
- Food and Symptom Diary (January 27, 2026)
- Basic Testing sheet for GastroEnteroPancreatic (GEP) Neuroendocrine Tumors (NETs) (January 27, 2026)
- NeuroEndocrine Cancer Australia Information Brochure (January 27, 2026)
- Symptoms and Signs (January 27, 2026)
- SA Support Groups (January 27, 2026)
- National Action Plan Sample Phone Script (January 27, 2026)
- National Action Plan Sample Letter (January 27, 2026)
- National Action Plan Flyer (January 27, 2026)
- National Action Plan Supplement Booklet (January 27, 2026)
- National Action Plan Booklet (January 27, 2026)
- Cancer Council Telephone Support Group (January 27, 2026)
- Melbourne Neuroendocrine Cancer Support Group 2019 Genetic Counselling (January 27, 2026)
- Webinar - Hereditary Endocrine Neoplasms (January 27, 2026)
- NETs Under the Microscope - Webinar (January 27, 2026)
- VHL Surveillance checklist (January 27, 2026)
- Brisbane NET Forum 2019 Hereditary Syndromes AMANDA LOVE (January 27, 2026)
- Neuroendocrine Tumours and Respiratory Symptoms (November 28, 2025)
- New Medicare item for PRRT (Lu-DOTA) added from 1 November 2025 (November 28, 2025)
- Role of Ki-67 Proliferation Index in NET Prognosis (November 28, 2025)
- Genetic Testing for Neuroendocrine Cancer (November 28, 2025)
- Sydney NET Patient Forum 2025 (November 18, 2025)
- Medical Treatments for Symptom Control in NETs (October 17, 2025)
- Prognosis in Rare and Aggressive Neuroendocrine Cancers (October 17, 2025)
- The Use of Surgical Interventions in Neuroendocrine Cancer. (October 17, 2025)
- Prognostic Significance of Tumour Grade in NETs (October 17, 2025)
- Factors Influencing Prognosis in Neuroendocrine Tumours (October 17, 2025)
- Will Norman Nurse Webinar #1 (September 30, 2025)
- Grading of Pulmonary Neuroendocrine Tumours (September 2, 2025)
- Differential Diagnosis of NETs (September 2, 2025)
- Breaking Down the Latest NET Data: What Research Grants Are Revealing About Early Detection (September 2, 2025)
- Adelaide NET Patient Forum 2025 (June 24, 2025)
- Melbourne NET Patient Forum 2024 (November 28, 2024)
- Launceston NET Patient Forum 2023 (June 29, 2024)
- Brisbane NET Patient Forum 2024 (June 17, 2024)
- Perth NET Patient Forum 2023 (August 16, 2023)
- Adelaide NET Patient Forum 2023 (June 15, 2023)
- Special event - Celebrating 25 years of Peptide Receptor Radionuclide Therapy (PRRT) (September 14, 2021)
Products
- NECA Awareness Dark Camo Tee – Ask Me About Neuroendocrine Cancer - Purple (February 24, 2026)
- NECA Awareness Dark Camo Tee – Ask Me About Neuroendocrine Cancer - Multi (February 24, 2026)
- “Ask Me About Neuroendocrine Cancer” Camo Tank Top - Blue (February 23, 2026)
- NECA Awareness Phone Case – Purple Camouflage (February 23, 2026)
- NECA Awareness Phone Case – Blue Design (February 23, 2026)
- NECA Awareness Phone Case – Multi Camouflage (February 23, 2026)
- NECA Awareness Dark Camo Tee – Ask Me About Neuroendocrine Cancer - Blue (February 23, 2026)
- NECA Awareness Camo Tee – Ask Me About Neuroendocrine Cancer - Blue (February 23, 2026)
- NECA Awareness Camo Tee – Ask Me About Neuroendocrine Cancer - Multi (February 23, 2026)
- NECA Awareness Camo Tee – Ask Me About Neuroendocrine Cancer - Purple (February 23, 2026)
- "Ask Me About Neuroendocrine Cancer” Dark Camo Hoody - Blue (February 23, 2026)
- "Ask Me About Neuroendocrine Cancer” Dark Camo Hoody - Multi (February 23, 2026)
- "Ask Me About Neuroendocrine Cancer” Dark Camo Hoody - Purple (February 23, 2026)
- Ask Me About Neuroendocrine Cancer” Camo Hoody - Blue (February 23, 2026)
- Ask Me About Neuroendocrine Cancer” Camo Hoody - Multi (February 23, 2026)
- “Ask Me About Neuroendocrine Cancer” Camo Hoody - Purple (February 23, 2026)
- NECA Awareness Tote – Camouflage Design - Multi (February 23, 2026)
- NECA Awareness Tote – Camouflage Design - Purple (February 23, 2026)
- NECA Awareness Tote – Camouflage Design - Blue (February 23, 2026)
- “Ask Me About Neuroendocrine Cancer” Camo Tank Top - Purple (February 23, 2026)
- “Ask Me About Neuroendocrine Cancer” Camo Tank Top Light - Multi (February 23, 2026)
- “Ask Me About Neuroendocrine Cancer” Camo Tank Top Light - Blue (February 23, 2026)
- “Ask Me About Neuroendocrine Cancer” Camo Tank Top Light - Purple (February 23, 2026)
- “Ask Me About Neuroendocrine Cancer” Camo Tank Top - Multi (February 23, 2026)
- March4NETs Tank Top - Multi (February 23, 2026)
- March4NETs Tank Top - Light (February 23, 2026)
- March4NETs - Light Tee (February 23, 2026)
- March4NETs - Dark Tee (February 23, 2026)
- Card Sisters Handmade Cards (December 3, 2025)
- Welcome to NECA flyer (September 17, 2024)
- OCP & Living With NETs Flyer (September 5, 2024)
- Support Group Flyers (June 6, 2022)
- Healthcare Professionals – Education Module flyers (June 6, 2022)
- Patient card – Medical Alert (June 6, 2022)
- Patient card – Bathroom (June 6, 2022)
- Nutrition and Neuroendocrine Tumours (June 6, 2022)
- Neuroendocrine Tumours – A guide for healthcare professionals (June 6, 2022)
- Neuroendocrine Tumours – A guide for patients and carers (June 6, 2022)
- NeuroEndocrine Cancer Australia Information Brochure (June 6, 2022)
- Neuroendocrine Cancer Awareness Ribbon (October 21, 2021)
- NECA Ballpoint Pen (April 13, 2021)
- NECA 2XU Visor (June 17, 2020)
- Black Onyx Beaded Bracelet (December 18, 2014)
- Natural White Howlite Beaded Bracelet (December 18, 2014)
